RSD and teeth
 

hI KILIKINA AND WELCOME TO OUR FRIENDLY rsd GROUP.
I've read about RSD and teeth. Yes, it is possible to get RSD in the mouth. It scares me to go to dentist. When I go, the dentist order antibiotics for the day of the appointment. I now use nitrous oxide which puts you in la la land. I think the relaxation helps to not fire anything up. I take Lorazepam also day of appointment. There is a website by a Drs. that worked with RSD patients in Florida. He is retired now, but another Dr. has taken over a lot of his patients. The website is www.rsdrx.com
It has so much good information in it. There is a question about dental work. It might be under puzzles. There are over 140 puzzles, which are questions from patients and Dr. Hooshmand's answers. Hope this helps. This reminds me to make a dental appointment, THANKS A LOT SMILEY FACE tAKE CARE AND LET US KNOW HOW YOUR APPOINTMENT TURNS OUT. i HAD A ROOT CANAL BEFORE i KNEW i HAD rsd. i WASN'T DIAGNOSED FOR 4 YEARS. BUT KNEW SOMETHING WAS WRONG. tHE DENTIST DIDN'T TELL ME, BUT GAVE ME EPHENEPHRINE mY MOUTH WAS WIRED OPEN AND i FELT LIKE i WAS GOING TO HAVE A HEART ATTACK. I got his attention and he unwired me and gave me an antidote. So I carry a medical alert card. My dentist and his assistant were more than willing to read about RSD. You might print off something about RSD and dental work & precautions.
Hope the best for you. loretta

Just an aside, but don't overlook the independent role of narcotics, which can cause dry mouth and wreak havoc on dental health in the long run. Add sugar - including that in the "lollipop" Actiq (Buccal fentanyl) - and without brushing close to a dozen times a day, you're an oral goner, or so I've been advised by an old pm doc. In this regard, note that the FDA approved patient warning for Actiq includes the following:

- if you will be using the lozenges, talk to your dentist about the best way to care for your teeth during your treatment. The lozenges contain sugar and may cause tooth decay and other dental problems.

http://www.nlm.nih.gov/medlineplus/d...s/a605043.html

A good friend of mine with decades of horrendous neuropathic pain (not RSD) had to have all of her remaining teeth extracted a couple of years ago, solely as a result of the meds. :icon_sad:

Hi Kilikina,

Sorry to hear that you are going to need some dental work doing soon.

I also have problems with my teeth. I never had any problems before I got RSD but now they seem to chip very easily. When my mum spoke to my doctor about it, he said that it's pretty common to develop dental issues with RSD and it is probably due to the fact that the body doesn't get enough calcium.

Earlier this year, I had to have a root canal, a tooth extracted and a filling. I read somewhere on the internet that when having dental work with RSD, you should make sure the dentist knows about RSD to try and prevent any spreading etc.

Theres quite a few articles on the internet about RSD and Dental Work so we took them for my Dentist to read. In the articles, it said that you should have twice as much anaesthetic injected into the gum as a 'normal' person would. My dentist was very understanding and followed all of the info we gave him. He also read up on RSD before I had any dental work done.

Thankfully, I didn't have too many problems from the procedure. I had quite a bit of pain afterwards but it settled down within a few weeks and was nothing compared to RSD pain.

I wish you the best of luck with your procedures!:hug: Please let us know how it goes!

Alison.

What perfect timing for this thread. I just had a crown put on yesterday, and withing about 5 min. my body was off the chair. Finally the dr. said that he would have to numb my so he could put the perm one on. Well, he did, (it hurt so bad), and it still hurt so much. So this morning I feel as if I was punched in the face. It still hurts to try and chew. I'm hoping (I know it will), start feeling better soon. Of course, falling the other day didn't help. My nose is still a little swollen, and I have brusing under my eyes. I still have to be carefull trying to put my glasses on my poor nose.

Hugs
Mary

Hi. I am sorry. I don't have teeth problems but do have a lot of other infection problems like ear infection,eyes etc. I had been told that people with rsd are more suspetable to things like infections. I do know in general I am so sensitive and not just my rsd area. I have heard like others stated too here about dental problems. Do you take calcium with vitamin d? I do twice a day for my osteoporsis but I think in any regards it is a good idea unless a reason not to. Many thoughts and I hope you feel better.

What a subject! Thanks for bringing this up, it will probably be a constant...

I've had rsd since 83, and my teeth took a real good crush in 98 my 2nd accident, (Hit my head, crushed my teeth, actually felt discs "herniate" click, click, click, click, and, I spit out bit of teeth and fillings since. (I am not afraid to say, that I am afraid to go to the dentist!) My Good doctor Knobler, is amazed, that I'd rather stick a "boiled" needle nose into my mouth, after (washiing my mouth with a shot of vodka), and just pull something out). Ya know? It's gonna hurt!, I pack it with gauze, now, this is not as weird as it sounds. I'm not talking about doing my own surgery, but, some molars have splintered, and became loose, so everytime I ate, I'd be in pain. So, It hurt to brush, etc.
I checked it out well, (in the middle of the night), and this one little "shard" just hadto go! So, it did. No Charge!
Two Shots! And gauze.
Done.

But, now, (get that outta yer mind),
It seems to me that I bleed from all over my teeth, even the "tips" of my lower front teeths, the tips seem to be painful.
I must brush with an oral b rototiler brush, gently.
I use this new Crest Pro Health toothpaste, I think it's great. It's got pecan shells in it I think for the abrasive.

I need to see a dentist, no doubt.

I'm about to lose my home, and, well maybe catch some chump change, and I'll get these things tended to.
I love my teeth.
But, I do foresee a day, when they won't be "mine".....

Pete
Asb

Hey Chris,

Heres the article that we used when I had my dental work done from American RSD Hope and it really seemed to help my dentist - I hope it helps yours too !!

http://www.rsdhope.org/Showpage.asp?...1&PGCT_ID=3396

I'm sorry you had a nasty time having the root canal last time!:hug: I can relate. When I had my root canal done in January, it was really painful!! My dentist kept hitting the nerves and my gum wouldn't go numb - it took about 6 shits of anaesthetic for my gum to go numb!!:eek: I had quite a bit of pain after the procedure but thankfully, it settled down!!

I hate the dentist also, especially now that I have RSD. I'm always scared that the dental work could make the RSD spread etc.

Take care and I hope your dental work goes well!!

I know how scary the thought of a dentist is but it is very important to have the work that is needed done. I have my hygienist alternate the cleaning between the upper and the lower and go more often. My dentist has agreed that we will only do the work that is absolutely necessary.

Although it doesn't quite answer your question Kilikina this is an interesting article from RSDSA

CRPS Patients and Dentistry: A Dentist's View
By Christopher R. Brown, DDS, MMPS

http://www.rsds.org/3/treatment/rsd_dentistry_brown.htm

Good luck with your root canal.

MsL

Hi Kilikina,

Michael is correct in stating that it is not the RSD but the narcotic medication, especially the morphine based such as Opana, Avinza etc. I have also been told that in addition to the narcotic medication ketamine does change the PH in your system. So , I have been precribed a special type of tooth paste that attacks tooth decay and I use a water pik type of toothbrush and brush many times during the day especially after eating.

I never had teeth problems prior to this disease, in fact I never even had a cavity until I was 25 and then I only had 2 until this disease attacked me at 41....From then on I have had 2 or 3 root canals 2 teeth extracted and a lot of pain in my mouth. Since I have taken the steps to take care of my teeth better I do see a improvement in the pain, no cavities etc. So, to sum up you just have to really take care of your teeth on a daily basis.

Good Luck

Gabbycakes

I figured that the meds were contributing to my dental problems, I didn't know which. Of course the med that work best for me is extended release morphine, oh lucky me.:oThanks for the info on special toothpaste to use. Is it prevident? If not can you tell me what so when I go back to my regular dentist after the root canal I can get a script for it. Having RSD is bad enough but adding dental problems is just adding insult to injury. I so appreciate the help, advice and warm thoughts from everyone. That is what makes everything seem better.

Kikikina,

The name of the toothpaste I use is called "Denta 5000 Plus" put out by Rising. Hope this helps.

Gabbycakes

Thanks Gabbycakes. I'm on my way to the dentist in 10 minutes.:)

i just had a filling done and was scared to death that my crps would spread. i think i got worked up for nothing cuz everything is fine. i got the cavity from a change in my mouth from crps or maybe the meds i am on which cause severe dry mouth. the dentist wanted to try something new with me. it was nitrous gas, he said you should feel like nothing matters, most people love this feeling so i said what if i dont, he said we will turn it down and change over to 100 percent oxygen and the efect only lasts 2 minutes once you say you want off of it so i agreed to try it. i hated it. it made me feel like i took too many pain killers(overdose) so they turned it off. the rest of the appointment went fine.

i have to wear a nti for grinding teeth at night. this is common for people who are in cronic pain(grinding teeth that is)....mouth guards are too big for me(personal choice).

it also helps with head aches, i have noticed less if i wear the nti.

I know what a mouth guard is but what is an NTI?

if you google "nti dental", you should get an idea. they can be expensive depending where you live and you have to get the tiny case to keep the nti in or your dogs might eat it. sometimes insurance covers the first one but not if your pet destroys it. i have an upper nti, it fits on my 2 front teeth only which allows me to talk andbe understood for the most part. the 2 links below are using lower nti's in the pics. it will be up to your dentist which will be best for you.


http://www.nti-tss.ca/pages/whatisit.html

http://www.headacheprevention.com/

my dentist told me that a lot of people with cronic pain clench or grind and most of the time dont even know they are doing it. a nti reprograms the jaw/your byte to not do this anymore by creating a small space of your back teeth. the only teeth that touch are your very front teeth.

good luck,

mike

ya gotta floss and brush daily,,we dont need a invite for infection,,,,with everything going on with the rsd and other afflictions its hard to must up the energy to do all the required body upkeep,,but its a must do,,,,if you let your teeth go a couple of days ,,they will bleed when you brush themmm,,it has to be a daily chore