Worried about surgey
 

Ive got a up coming surgery[revision for the hip],,i just had THR 3 months ago[pain is bad and stabbing upon weght bearing].you should be walking after 3 weeks with no pain Im still on crutches which .means its eaither a loose cup,,or rsd migrated there,,,the surgery could be a disaster,,or could be better,,,but after all these meds and so many surgeries in the past,,my liver is fired up and tender and some shortness of breath ,,exspecially right after i take 2 percocet,,plus all these surgeries are hard on the heart ,,im going to see my dr in about 2 weeks ,,and ask if he wants or knows about the long continous blocks,,,if need be i can always throw it down the road another 6 weeks,,but im tired of the pain,,and as you all the know the insurance gets iffy, so i dont wanna get stuck like this, ,,,either way,,,id appreciate your input,,and expertise,,im 48,and ive even have a rash on one of my feet,,i think its a reaction from the long term and adverse reation of the opiates, and acetpedom and all the other boat load of meds i was on,,i should have known better,,i do trust in God and psalms 139: 14-16 tells me my days are predeston before i was born, i do joke alot here at times,,but this is to lift up a tired grieveing group of souls,,you guys are the best,,and makes me forget about the enevitable,,,,,,,,ps ive off all my meds until surgery,,gotta let this liver heal,,,, ive abused my body alot in my time. i guess as my dad used to say is true before he died,,,when you dance ,,you gotta pay the fiddler,,,,sorry about the typos,,,,,,,,,,,,,,,,,,,,,bobber

I wish you a successful surgery and a speedy recovery. I find a lot of comfort in the Psalms.
:hug:

I am sending thoughts as well. It is understandable to be worried. Do you have real time support as well to help you? Try to take one day at a time. I am not good with that as I am a worry wort but am working on it. You will be in my thoughts. Please take care

thank you
 

thank you friends2u and danilla ,your concerns are appreciated,,,your prayers are welcomed ,,Ive going to see the neuro dr wednesday,,,he is the one who gave me the shots in the spine that didnt seem to help,,,they seemed[the last one ,,aggravated it 2 days after .Im wondering if i should even have another,,im always hoping that this one will help,,the 1st shot,i felt nothing,,the 2nd dr's visit ,he said it was possible that he missed, one the 1st shot,,,the 2nd shot may have helped for a couple hrs,,couldnt really say if it did ,because he gave me a seditive ,, the third semed to aggravate it the next morning on,,my leg was inflamed and took 2 weeks to calm down,,,,thank you all,,
I"ll keep you posted and will keep you and the group in prayer,,bobber

My thoughts and prayers are with you!! Work closely with your doctors and take it easy until surgery. We are here for you!

How did it go with the neurologist today?

the neuro is running blood tests to rule out any autoimmunes ,pray that they come back clean,i had a bone scan 2day,,,the tech showed me alot of hot spots in the injury site,,spreading into the foot some spreading to the other leg,,,mirroed,,my legs look like a rotesery chicken and the skin is thin,,my feet sting like they are sunburned and im not in the sun ,,im iside on crutches,,poor circulation,,,exspecially when my legs are in the dependent stage[standing up,,,,,,,,,,,,keep me in prayer,,,oh the dr and tech doesnt think its rsd,,the neuroligist at the imaging center didnt know what rsd stood for ,,but said i didnt have it,,,,,where is the nine iron when you need one,,,,,,,,,,,,,,pleased pray that the blood comes back clean,,,,,thanks group,,,,,,bobber

Bob -

Please. Get a copy of the radiologist's report of the bone scan to show to you PM. And if the jerk of a neurologist is the guy who's reading the films and writing the report, then you need to get copies of the images themselves.

I'm no doc, but that sounds like a classic positive bone scan report for RSD/CRPS. Sorry. :( So, I'm not sure that a clean result on the blood test for autoimmunes gets you out of the woods. Can't believe the neurologist said he didn't know what RSD was, but you didn't have it! :mad:

Mike

Hey Bobber,
You mentioned postponing the surgery for 6 weeks. I'm confused----do you really want a surgeon operate on you that doesn't know about RSD. Do you have confidence in this surgeon? Surgery is critical thing when we have RSD. It can get worse-the RSD. I don't want to scare you, but you want to be sure regarding surgery and your diagnosis.
Where do you live? Close to the Cleveland Clinic in Ohio?
I'm not comfortable with what's going on here. Is this WC or private insurance? The RSDSA is a national organization that you may get some good names from or at least a rsd support group location and phone number. You can get a lot of good information from a local group, regarding Drs. etc.
Let us know what is going on? Please, Your friend, loretta

hey mike
im ahead of you on getting the report and i already havew the images,,i will have in hand the report but i insisted on haveing the images b4 i left the dr,,,the pain med dr yestaerday as well,doesnt think its rsd even tho i look terrible ,and as like you my feet [on the bottoms and back of the heel]are killing me when i lay down ,feels like ive been cane'd......i called the dr in U,N,M i need a referal which im working on,they say its hard to see him,,the lady at the desk there said he will read the referal,see what meds and injections have been done and its up to him if he wants to see you,,,,pray buddy pray,,,,bobber

You got it. I would also suggest that you have some professional quality photographs taken of your legs ASAP and see if your pm doc. can hold off submitting the referral by a couple of days, so the pics can be in the package. (I know that in my case - a too many years ago - some shots of my almost flourescent red feet against a solid white background made a big difference at a crucial time.)

Mike

hey Loretta
im not on W/C..its a private insurance,,,,and it was the guy who reads the bone scan who forgot what the R stood for in rsd,,,,ive got hot spots everywhere in my heel{injury site] and thru my ankles ,,,and feet,,My hope is in the Almighty,,he see;s whats going on,,,I will lift up everyone on this site to him,,that you can believe ,,,,,,bobber......p.s my hip surgeon is aware of the rsd possiblity,,and i told him it would be wise to do a continous block and he agreed,,,we both yesterday agreed to give this another 7 weeks to see if the hip will heal,,,

Hi group
i just came back from the foot dr 2day,,its eveident he wants to write me off,,he says i dont have rsd,,,maybe M.S..i told him i had a cat scan and mri feb this year and it was ruled out,,he looked at my bonescan and allthough he see;s the hot spots,,he is clueless,,but he doesnt want to see me anymore,,although he said 4 months ago he would free up the nerve entrapment,,but he says i dont have that anymore,its healed he says,,,but i showed him and it looks terrible,,my legs are thin skined and red with mottling,,poor circulation and its mirroed to the other leg and now ive got burning in both arms and shoulders,,he says i have M.S and spinal radiculopathy,,,,i told him i had a mri and cat scan for ms 4 months ago,,he says he knows what rsd looks like but i donthave then first symptom,,i kept my composure and dignity and left,,,,,,,,,,,,,ive got a monday appt with pain med guy to read the bonescan and get his take,,i hope God heals me ,,my faith is in him,,pray group ,,pray,,may the Lord in whom we serve heal us,and may he forever be exhalted as God ,,,,,,,,,,,,,,,,,,,,,,,,,,,bobber