sorry i have been absent.
 

i just wanted to let everyone know the reason that i have been gone. i have been having a very horrible time with my RSD as of late dec 08 and this summer has been very ruff on me to say the least. they are goin to be addin new med to my pump on the 6th to see if they can try and bring down the pain levels. as it has just gotten way out of control. please know that i have been coming and reading alot. just not in that friendly mood lately. as most of you know how the pain causes us to be not the best socially sometimes. please know that i miss ya all. and hope that i can get to feeling better soon

miss you all tons

carrie

Sending thoughts and I am so sorry you are going through such a ruff time. I hope the new med gives you relief. If you want I am always here and you can pm any time. You don't have to be in the friendliest mood with me. Sometimes it just helps to vent or have an outlet. Many better thoughts

We all love you just the same, but hope you start to feel better..

I'm hitchin' a ride to the dentist, two infected teeth.
OUCH!
I can't even talk!

pete

thank you to both of you and pete i hope that they are able to help the teeth issue. i know too well of those issues..

Hi sweetie,
It is time for us to chat again! I have missed you. I am so sorry you are going through a rough time. I do understand about pulling back when one is in pain.
As you know, I withdraw too. But, I miss you and I love Ya Much!
Talk to you soon.
Love from Di

I'm sorry your having such a rough time. When the pain is bad the pulling back is best. I hope the meds work and you start feeling better soon.
Take care,
Sherrie

Sorry to hear you aren't feeling well and that your pain is so high lately, Carrie!:hug: I hope you can find something that will help you soon and you are in my thoughts and prayers. I have been in a bad flare lately also so haven't been on the forum or posting much. I think we all need to withdraw a little at one time or another when our pain levels are too much. Just know that we all care about you and are here for you always! Sending many pain-free hugs your way!

So sorry Carrie - that's a long flare. I really hope you feel better soon.


I'm out of commission also, I've been horribly sick since just after the 4th of July holiday. I just started using 50 mcg Fentanyl patches yesterday, but I still need percocet and methadone because my pain is so awful

Hopefully I'll be back with you all soon... I miss you.

Carrie, and the rest of you, take care. Sandy

I'm the same, Carrie, I totally understand....
My pain is over the top.

Now, today I got some dental xrays, and I have a tooth infection, so, several days of antibiotics, and Monday, the little bestird comes out! More Fun!
What my dentist said was true, the antibiotics would make the pain WORSE, before it got better......
I cannot argue!
It's going up to my head, and back down into my neck. A Migraine "trigger" toothache.
La la la, la la la la la!

I'd give a call, if I could stand to talk!
Agh!

It seems it's going right through my entire TOS!

Don't it seem, that it only takes a little "shove", "push" or "kick", to get us off of our little "sturdiness" that we call "life"?

A Friend was over tonight, and I spent quite a while, apologizing, that I was sorry that I felt crappy. I didn't mean to take it out on anyone, especially a friend!
(Of course, I ordered in from a new place and it was terrible).
Should have stayed with the tried and true.
I walked to my butcher shop today, in the rain, and they were closed! AGH! Because of an electrical problem!
Oh well. Came home soaked.
That felt great!

Fun day over all though, after it was over, I realized, how OLD I am.
Today is my 30th marriage anniversary to my first wife.

Oh My.

That IS, at least behind me.....


Be well ya'll,
and,
Carrie,
Stick Around!
You make it more fun!


Pete
asb

Hi Angelrsd
Glad to see you back,,,no apoligy needed,,we all have aggitation,,irritability,,anger and depression yada,,yada,yada,,,it comes with rsd,,,it reminds me of having my finger stuck in a car door all day long and trying to cope with life always in pain,,you just want someone to come by and open the door to relieve you of the pain,,,i'll pray for you,,,but no need for apoligys,,we all feel the same at times,,your in my prayers,,,,,,,bobber

Rsd
 

Hi Carrie,

Know that you are missed, but please take care of yourself first. When I am in horrible pain I to do not want to chat with people or post on the board. Know you are in my prayers and I pray the new med that is going into your pump brings your pain levels down.:grouphug::grouphug::grouphug::grouphug:

Kate

Carrie and Pete, I hope you both feel better soon.

Hi Carrie,
 

I've been thinking about you a lot lately and I have your phone no. laying by my bedside. I was going to call you last night but I know you have little ones and I hate to disturb them.

I'm sorry to hear that you are having such a hard time. If you want to talk girl, you know my number.

Love ya,
Ada

Hi Carrie,
I'm so sorry you are have a rough time. I hope your pain level drops. I had a rise in pain due to not sleeping for weeks. Wouldn't get to sleep till 5-6- a.m. My Dr. said that wasn't acceptable. When we don't sleep well, we don't get restorative sleep, which in turn means pain goes way up. He has been doing a study on a med, seroquel, the study was 200 people, low dose seroquel,below the dose of what it was designed for. bi-polar.
I switched from amben cr to seroquel 5 weeks ago and my pain went way down. I went for 6 vicodin to 3 a day. Went from 6mg of lorazepam to 2 mg a day. The restorative sleep has helped me so much. The study will soon be published. The study involved fibromyalgia patients, which I have also.
He just finished building 2 new clinics and they have HBOT in each of them. He said the results of HBOT are great. I'm trying to build our coffee business up so I can afford the HBOT. Insurance doesn't cover it for RSD and is expensive.
Carrie, have you done journaling. That is something that helps me alot. I went into therapy when my parents died. And when I was diagnosed full body, my neurologist suggested i see a therapist. I didn't like the 2 names he gave me, so I found my own. I've been seeing him once a month for 5 years. He was been a lifesaver. he is a neurologist, pyschiatrist, and pharmacologist. For me, I think finding the right combination of meds has helped a lot. I went off 3200 mg. of neurotin a few months ago. Only have had a couple of jolts. About 4 years ago, I passed out for a long time, my husband things an hour and half. Paramedics told my husband they thought I was dead, couldn't find a pulse, had passed out again bp 60/40 Spent 4 days in semi/icu Just the RSD.
The hospital I asked to go to was the one the RSDSA had their annual meeting at. They are going to release a DVD of the meeting. They said 50,000 are getting RSD every year.
So sad.
I am so sorry you have been down. My Dr. switched my anti-depressant to Cymbalta 120 mg. For me, it is working better than paxil and wellbutrin. I know we are all different.
Our business has been hit hard by the economy. We have a office coffee delivery business. I'm going to try and get some new accounts this afternoon in 110 degree heat.
I haven't done this since I passed out 4 years ago. I've hired a couple of people to get new accounts. Take care and please know I'm thinking of you. I've always enjoyed your posts and encouragement. Your friend, loretta I'm 61 , married, have one daughter 29 and son in law,29. I like the picture of you and hubby. Glad you weren't hurt during the tornado you had.

thanks to all for caring so much it does make me feel better. im just tryin to deal with daily issues right now and the pain is just wreaking havoc not sleepin and horrible pain and that alone is a deadly combo. thanks to all for the great thoughts..

carrie

pete i hope that the tooth gets better i know how ya feel i still havent been able to get mine that are rotten out and still havin alot of pain with them hang in there buddy

love ya all tons

carrie

Carrie, just wanted to say: hang in there!!!