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-   -   need help with locked in syndrome (https://www.neurotalk.org/new-member-introductions/184691-help-locked-syndrome.html)

chrismartin 02-28-2013 12:12 PM

need help with locked in syndrome
 
my dad had stroke 11-27-12 which left him with locked in, he is 58.. he has regained some movements in his face. He can smile, frown, open and shut mouth, move tongue, mouth words, blink eyes, move eyes up and down only, move eye brows and twich fingers on both hands. He has shown alot of progress and he wants to fight and beat this, but there isnt much help out there for him, so we are reaching out in this group to find help. drs said he will gain most of his movement in the first six months. please help!

Jomar 02-28-2013 01:32 PM

Is he having any physical therapy to help regain movement?

chrismartin 02-28-2013 05:07 PM

Quote:

Originally Posted by Jo*mar (Post 961445)
Is he having any physical therapy to help regain movement?

yea. but its just the family doing it. cant get professional help yet. insurance hasnt approved that yet. but we do ok i think.

ginnie 02-28-2013 08:23 PM

Hi chrismartin
 
Welcome to Neuro talk. I am sorry about your dad. I have heard of this condition before as my son is an OPT. He has had patients with this kind of disorder after a stroke. Can your dad, do as JoMar suggested and get into a facility that can work with him around the clock? That intensive therapy can help restore some movement. It takes alot of time though, and having multipal approach would be wonderful for him. If it were my dad, I think I would try this route. I wish you all the best. NT. will be here for you. ginnie:grouphug:

Darlene 03-01-2013 02:19 AM

Greetings!!
 
chrismartin,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. You will find out we are supportive and relaxing place.

Sad to hear what your dad and family are going through at this time. It is great to hear he is one that is wanting to get and go, and he has a great family standing right be hind him.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:


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