TN and AD
 

Hi I am a 30 year old wife and mother of a 3 year old. I was diagnosed with TN and have been treated with meds, glycerol injections and have had the mvd surgery. Though I am relieved of some of the TN pain I am now left with AD that my neurologist and neurosurgeon says will never go away. This is completely devastating. My neurologist will not treat the pain, he will only give me meds for the shocks so now, I am awaiting a new appt at a pain management center. I was given lortab (hydrocodone) for the pain and that did take the edge off, but the doc will no longer prescribe it to me b/c he says I have to wait until my new appt. I am so upset that I was never told that this could happen to me. The neurosurgeon just kept telling me that it was all apart of recovering, but when I finally demanded an answer, he said well your nerve is screwed up now, it's just something u have to live with. Great right? Anyone that could tell me about your experiences, maybe new meds, alternative treatments, would be great, It's just nice to hear that I am not alone in this world of pain that seems to consume my life at times. Thanks, Jess

Hi, Jess78!
 

Welcome to NeuroTalk! I am so sorry that you are having all these problems. A short while ago I had a specialist try to hang a diagnosis of progressive neuralgia on me, but I went and did my homework, and when I came back with evidence that my symptoms didn't match the condition, she backed off and admitted that she had said what she did because it was the last thing she could think of. With Progressive Neuralgia there is no treatment, either, and I suffer from severe chronic pain at times as well. There was no way I was going to let them shrug me off as incurable, and tell me to make the most of my pain.

I keep pushing and pushing. I've seen 28 docs now and been to 8 hospitals, and even though I don't yet have a diagnosis, then at least I don't have a WRONG dianosis, which could be worse. I always do my homework on every condition and every med which they suggest to me. I did go to a pain management center a few years ago, and the top doctor there told me that if I let my other docs plant me in pain management, then no one at all would be looking for what was wrong with me. I'd just be out of their face, so to speak.

Some people have been diagnosed and do need pain management. But for others of us it's just a dead-end street. So be careful about letting them send you there. I wish you lots of luck in sorting out your troubles, Jess78. Lots of good feelings to you! luck!

Hi Jesse and welcome to NeuroTalk. I see that Idealist has given you some good advice. Here is the link to our TN forum...http://neurotalk.psychcentral.com/forum26.html

You'll find these forums full of supportive people. I'm glad you've joined us. :hug:

Hello and welcome to NeuroTalk!! I'm so sorry for the pain you're experiencing.....you'll find lots of support and understanding here at NeuroTalk. Glad you joined us!


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hello and welcome to neurotalk .... although i personally do not have any answers for you i am sure that you will be able to find some answers and information which could possibly be useful to you ... there are lots of friendly and supportive people here ... again

Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene :hug:

Welcome to Neuro Talk, do not hesitate to explore the site and post your questions and concerns and advice, this place is filled with a lot of helpful and kind people, again welcome to NT