I finally got an appt with a new neuro!!!!
 

YAY ME!! I'm excited. I just sent over all the medical records I have. Going in on the 11th hopefully this one can treat the ON and not just write me another prescript for pain pills like the last one keeps doing.

Yay - I am SO happy for you - that is great news!!!

I really hope that this Neuro is the one for you and that he is able to help you!

Am thinking lots of positive thoughts for your appointment and have everything crossed that it will go OK! Please keep us updated when you can!!:hug:

What has your current neuro done for the ON? Pretty much the only treatment is IVSM that I know of and that really only reduces the inflammation and hopefully speeds up healing / minimizes damage. There is no guarantee that IVSM will really fix ON. It should improve over time, though.

I remember your other post and I agree that your current neuro seemed like he was a bit of a moron, but I don't want you getting your hopes up that a new neuro can "fix" the ON. You definitely need a new one, though. I hope this one is a keeper.

I know it isn't a 100% thing, but I also know that after 3 rounds with the oral steroids any idiot would say hey let's try the IVSM which my neuro did not. He said oh well, the dosepak didn't work, here have another prescript for another pain killer and come back in 2 months. I called to get MY medical records from them...they want to charge me $60!!

Can they do that by law? I thought they had to release your medical records to you.

I'm glad you found a new neuro Legzy. They can charge for giving the records to you. They can't charge to forward them to a new doctor (as far as I know.)

I think I'd want copies for myself though anyway.

Yeah Leggz!!! That's awesome. I hope this new neuro works out better for you.:hug:

From the NMSS:

"There is no definitive evidence that treatment with steroids produces a more complete recovery than that which would have happened without treatment."

"Studies have suggested that a short course of methylprednisolone administered intravenously, sometimes followed by a tapered course of oral steroids, may help reverse the inflammation and restore vision more quickly. However, if the symptoms of optic neuritis are mild and an MRI does not show any lesions, the doctor may decide to allow the disorder to resolve on its own.

Intravenous steroids are used because people treated with oral steroids in the Optic Neuritis Treatment Trial appeared to have an increased risk of recurrence and did not do as well as those who received no treatment."

http://www.nationalmssociety.org/abo...tis/index.aspx

Good luck with your new neuro!

Cherie

Congrats on getting your appointment with a new neuro. I hope he helps you!!

Thank you Cherie for digging up that info. I was going to point that out, but didn't have the energy to go looking. I can't believe her old neuro thought a mere dosepak would do ANYTHING!!!

Even when I have done oral steroids, it was never a dose pack. It was 600 mg to 1000 mg per day - more similar in dose to the IVSM. My current neuro says that might be fine for some people with just sensory issues, but prefers the IVSM for me because he feels it is more effective for vision / mobility problems.

What is the diff between being a dose pack and not, just being a high dosage?

I've had dose packs of both prednisone and methylprednisolone (mp is the lower dose of the two) - both way lower than what you've had, but can't recall exactly, just a few mgs.


Thanks.