It's not permanent
 

Well not according to a UK High Court Judge anyway so they don't have to give me early release of my police Pension.

So, they know better than Doctors? I got a similar denial about my disability here in the U.S. This disease does not heal itself. There are miraculous stories of "remission" mostly in younger people, but there is no cure.
My employer keeps wanting a timeline, but there just isn't one. My P.M. has even put that there is NO prognosis.

Good grief Kev :confused:

There are plenty of research papers where they state that there is no known cure for the condition, and that it comes down to pain management for patients whose symptoms spread and/or continue after the first year. (I'm sure you know that and that you put it in your evidence). How on earth can they have decided it is not permanent?

I suppose the problem, as always, comes in the wording....I suspect that often it is stated as 'at present, there is no known cure, and the condition may become permanent for some patients' or similar. 'It is not always permanent' is carte blanche for a court to decide it is 'never permanent'. Grr.

This stuff drives me mad. How dare they?! It's just about being mean and not wanting to pay out, and the job of their lawyers is simply to admit nothing that might cost them money, and to find any tiny shred of an idea that might rubbish what the claimant is saying, and then blow that up into a huge deal. Utter utter utter ********.

Keep fighting Kev.

Bram.

Some pratt named Phillip Stellar. who is treating a grand total of 5 sufferers said I had,nt tried gabapentin amitrip something or other. Even though I have an advanced decision forbidding any emergency treatment even in life threatening situations becuase I have been badly hurt or made worse in 4 hospital including by 2 specialists is not reasonable grounds for refusing these despite explaining that they do not work on all sufferers, are only temporary and do not prevent spread, wounds that will not heal and most of our symptoms.
So this cannot be considered permanent

Sounds like you have grounds for an appeal then Kevin. If you possibly can, you should pursue this, sounds like its too important to you to let that kind of b***crap be laid down as a judgement, especially as it can (and will) be used against other sufferers in the future. You have every right to appeal, and if that fails then you can take it to the European Court of Human Rights.

I mean, FFS, if a policeman can't get some form of justice through the courts with this kind of thing, then what chance has anyone else got? You need your pension now for darn good reasons, and it's pure pettiness that they are refusing. They have no good grounds and they know it.

Bram.

Hi Kevscar,

I wonder if perhaps you have seen a pain psychologist? Reason I ask is since you aren't comfortable with other recommended treatment methods, perhaps maybe treating with a pain psychologist instead might suffice the officials? I think it is fair to say that we can all use someone to talk with regarding our struggles, pain etc., in hopes of finding better ways to cope. I also wonder if you are on any medications to help with depression/anxiety etc., that could help you? It is understanding to have concern over treatments after being hurt but, I wonder if there isn't something that can help you even if just a little.. by your posts it does appear that you are really down and that is very sad, not that it isn't justified by any means but sad none the less.

I truly hope you have an opportunity for an appeal on this decision. If not, how long until you would naturally receive your pension? Are you on disability of any other type in the interim?

Tessa

A witch doctor no thanks sent to psycyatrist to be evaluated for the mental suitability for amputation, she lied to me and said that that was not on my refferal form and they didn't do that, was planning self-amputation when my specialist phoned and told me she lied, saw her boss later who had done nothing abot my complaint and told me my spread occured because I knew it could.
I have no intention of ever having any medical treatment from anyone again.
Bram thrown all the paperwork away the fight to get govenemtal action for all of use is more important, had anything from your MP yet

This is the last email I had from him...in July.

'Thank you for your email. Yes, I have read through the Hansard report of the debate and I think Iain did very well in raising the profile of the disease in the debate. I will certainly be happy to support him.
Bet wishes
Laurence Robertson M.P.'

Nothing since then. I'll chase him up. If you've got any new reports etc since the debate, email it to me and I'll send it to him. I've politely offered to meet him, I just might start being a little more persistent.

Oh dear, that's a shame about the paperwork for your case...

Bram.

If you can get him to come to you so he's sees how it affects all the family it might shock him into action, especially if you make it clear that it could happen to him, his family or his friends from something as simple as a twisted ankle or a sprained wrist. After seeing us at home was when Iain really started to work on this.

So many stories that have turned from bad to worse makes it hard to stay positive, but it is important that we do the best we can to stay positive. I cant stand stupid, single minded and self rightouse people, so lev. dont give up its time to shove it in their face, print all the documentation you can, pull up RSD/CRPS info from around the world, copy some of our stories their is too much evidence that this is progressive and permanent , and from the best hospitals/ clinics and Drs in the world. so much literature to support your fight and so little to back theirs, the stories of the lives and families torn to shreds because of this beast. Let the truth do the work for you and if they are so blind to see it find a group of local sufferers that are willing to speak on your behalf, its just the way this circle goes, we usually have a fellow sufferers back. and if it helps you . think of the people that might follow you in this struggle, and how you might ease this down the line,(its how i get to my dr,s appointments and how I face the IME's (insurance medical exams) I hope you dont give up. I will send you what ever positive enrgy I can muster and pray that tomorrow finds you easier than today.