chiari decompression
 

Hello
I m a newbee and looking for answers at my wits end any help would be great
My daughter is 10 she started having severe headaches and vomits everything she eats and drinks immediatley after eating even if its a bit
on february 14 2010 she was diagnoised with chiari malformation on march 1 and had surgery on the 5th of march we spent 5 days in hospital she was still vomiting and had hed pain when were sent home we came back four days later she couldnt even walk with out help still couldnt keep food or any drinks.they did every sort of test amaginable from gi issues to more cts and an icp monitor we werere still hopefull on the second week they put an ng to feed her they gave here ensure at very slow rate they took out after a week and she kept food and water still had a headache so home we went thinking all was well four days at home she was back to vomiting every thing she ate and drank it was the same as in february we went to her neorsurgeon and they said it was not the chiari they fixed this and said follow up with giwe waited a full 10 days of vomiting and horrible headaches and we went back to hospital we spent 5 days there with iv and them sending us home saying we can watch her vomit at home they did all the tests they could last month so she keeps no food no water she trys to eat and drink but it comes back immediatly this has been so frustrating to watch her cry shes hungry and shes only going to get weaker.I can not belive they sent us home

Welcome slackermom
 

http://dl5.glitter-graphics.net/pub/...b6cseupp3d.gif

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help. There are great number of fellow members here to assist as possible. My thoughts and prayers are with you.

Check out in this Forum to see if a person is there to assist you. And please give your daughter a great big :hug: for me.

http://neurotalk.psychcentral.com/forum71.html

Again welcome, looking forward to seeing you around.

Darlene :hug:

http://i489.photobucket.com/albums/r...WELCOME-vi.gif


Hi, and welcome to NT! This is such a great place with so many friendly, caring, and helpful people.

We're glad you found us! :)

Oh my....I would be frantic too in your situation. I haven't had any experience in this area, but here is the link to NT's Chiari Malformation forum. It looks like there have been some prior discussions about Post-opChiari Malformation surgery.
http://neurotalk.psychcentral.com/forum71.html

Wishing you blessings and hoping you and your young one will soon find comfort. Let us know how things are going when you get the chance!:hug:

When I had mine dne,, they sent me home after two days,, so weak my son had to carry me to the car,, ended back in hos[ital two weks later with spinal menigitis,, surgeons will say,, we did our jobs,,, its not our fault that things are worse,, its like a broken car, mechanic willl say we fixed teh problem,, I wish I knew what to tell you,, but I can suggest you raise holy hell to a supervisor in the hospital,, if you dont,, your alone in your fight,, you need to just literally go off on someone,,,, I have had to do almost just that,, things are not right for me,, ,my gutrs dont work,, my legs are stumps,, and I went through that barbaric surgery thinking things woiuld get better