Cellcept?
 

Hello everyone! It has been awhile since I have posted. I saw my doctor today and he is starting me on Cellcept. I am continuing to slowly get off of prednisone as he does not want me to continue using it. It has helped me somewhat what i know being on prednisone for long periods of time can be dangerous. So has anyone used Cellcept before or currently doing so? Doc said Cellcept has been showing very promising results so we shall see.

We also discussed the Thymectomy again. He does not feel it will really help because of my being seronegative but also does agree that aside from the risks of surgery, doing it wont make my situation worse and could possibly help. Plus, with my being in the military and having all of this covered, it would be good to get it done because UNC has some of the best doctors for the procedure. I am also curious about anyone thoughts on this as well. Well I hope everyone has a great holiday weekend!

I have been on Cellcept for 11 years - started out at 1,500 mg/day and increased to 3,000 mg/day after about 4 years - I don't have any side affects and only have to get my blood checked every 6 months - it was monthly when I started, but after a year, it went to quarterly for a couple of years, then semi-annually. I believe the blood tests are because Cellcept is processed through the liver and they want to make sure everything is ok with the liver.

Good luck!

I have been on 2,000 mg daily for 2 1/2 years. I have had IGIV infusions monthly, been taking 60 mg of mestion 5 times daily and prednisone on a decreasing dose for the same time.

My condition has improved considerably but I do not know what treatment or if the combination of all is the reason.

I have never had a remarkable instant improvement to any of the treatments like I have read about on site. It's been slow.

For me, the only med that seems to have some change in my conditon in a relatively short time is prednisone. From 120 mg dialy down to 15 and then back 20 and now up to 40 mg EOD.

Tony

I've been taking Cellcept (2000 mg/d then 1500 mg) for 4 years now without any effect, good or bad...
Maurice.

I have been on 1500 mga day of CellCept for 2 years. Being on it has helped me to decrease the Mestinon. I used to take 60 mg 4 to 5 times a day. I now take 30 mg twice a day.

While taking it my weak leg muscles feel better. I have however developed plantar fascitis. My eye no longer droops, although my neuro says CellCept does not help occular MG. I don't get out of breath as easily.

I have only been sick once while on CC. I had viral pharyngitis this winter and was in bad shape, ER, etc. We decreased the CC and went on Prednisone. I finally got better after 3 months of this.

I am a teacher and have been taking it easy all summer. Our plans are to completely go off Mestinon, continue CellCept and take a small amount of Prednisone every other day when I go back to work. My school is not air conditioned and it has been near 100 degrees all of July.