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-   -   Is my PN diabetes related or from Miller Fisher Syndrome (https://www.neurotalk.org/peripheral-neuropathy/157264-pn-diabetes-related-miller-fisher-syndrome.html)

Dahlink 09-15-2011 09:11 AM

Is my PN diabetes related or from Miller Fisher Syndrome
 
Hi Everyone,

I've just joined this board after checking out lots of the posts here. Tomorrow I'm going shopping for B12!

I have poorly controlled type 2 diabetes and in 2008 had Miller Fisher Syndrome.

I have recurring severe periphal neuropathy in my feet - I always wear socks as my feet become very sore if left uncovered. Reading one of the postings in the B12 Sticky I was thinking "this person has my feet" - burning/cold, hypersensitivity, intermittent sharp pain - everything I am having! The last check I had post MFS the neuro said my foot issues were probably diabetes related and made no suggestions or recommendations.

My feet are now keeping me awake and causing me a fair amount of anxiety and distress. I am currently not working and am finding it very hard to apply myself to job seeking when I'm so tired and upset.

Apart from the B12, what pain killers can you recommend?

mrsD 09-15-2011 01:36 PM

I'd get the Vit D checked too. Low Vit D is showing up in patients with diabetic neuropathy.

http://docs.google.com/viewer?a=v&q=...Wpf5mtsTcrKH2A

and:
http://www.lef.org/newsletter/2008/0...neuropathy.htm

and:
http://www.ncbi.nlm.nih.gov/pubmed/21726279

Here is my Vit D thread:

http://neurotalk.psychcentral.com/thread92116.html

Brian 09-16-2011 05:18 PM

Hi, mine was caused through prediabetes and low B12, the best thing i found was to get my sugars back down to as close to normal as possible and keep them there so your nerves can eventualy heal in time, watch out for lows as well as they can damage the nerves.

The supplemements i found helpfull besides B12 were
R - lipoic acid [100 mg daily] can lower sugars so keep checking your meter.

Gamma-linolenic acid (GLA) is an n-6 (omega-6) polyunsaturated fatty acid commonly contained in Evening Primrose Oil (EPO) and Borage Oil (BO). EPO typically contains more GLA than BO. Depending on the method of extraction from the plants, EPO can contain varying amounts of GLA. Buy a brand of EPO that contains at least 10% GLA. For example, choose a 1300mg EPO tablet that contains at least 130mg of GLA.

You may find it hard to get B12 methylcobalamin in Melbourne, chemists usualy only stock b12 cynocobalamin which isn't the active form like methyl' some compound pharmacies sell methyl but want a small fortune for it, i used to get all my supplements from the US from an online store called iherb, very inexpensive that way, takes about a week to get them over here in OZ.

Best of luck to you.
Brian :)


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