Worried
 

Hi my name is laura
i am 45years old i have twin boys both who have nf1.i am new to this and because i do not write and spell good you might struggle to read this SORRY...
Ben is the oldest of the twins by 2mins then Joe .both were born at 26 weeks prem both have loads of problems.Is there any1 out there who has the same sort of problem that i could pick there brain and get a bit more infomation.please no doctors or medical people as i do not understand there terms only layman terms.I can be contacted by email Thanks for taking the time to read this
KIND REGARDS LAURA

welcome to NeuroTalk Laura tho so sorry to hear of the striggles your little ones are going thru

I dont know much about NF1 but did find this and hope it may be helpful to you
http://www.kidshealth.org/parent/system/ill/nf.html

we also have a children's health forum so you may want to also post there in case other parents have any insight for you
http://neurotalk.psychcentral.com/forum9.html

hoping you find answers
Cheri

Hello Laura and Welcome to NeuroTalk. I'm glad you found us. I can't give you any vision about NF, as I don't know anything about it other than what I've seen on a medical show or channel on TV. But, I am a Mother of a chronically ill child, so I understand your frustration and fear.

One other thing I want to mention is that NeuroTalk has so many caring members, that this can be a place for you to come to for not only information that may be helpful to you and your twins, BUT also for hanging out w/members who are here for one reason or another.

I hope you will take a look around the boards, make yourself at home and join in anywhere. I really look forward to seeing more of your posts, Laura.


http://dl8.glitter-graphics.net/pub/...ezyf7bb20g.gif

Hi Laura! :welcome_sign: to Neuro Talk. I'm not familiar with the condition you're inquiring about but I'm sure that there are others here who will be able to give you some insight.

I just want to give you a big hug Laura. :hug: To have twins is a big job for any mother, but to have twins with medical problems is an even bigger strain.

Welcome to NeuroTalk dear Laura! You're among friends now, and I hope you'll find a niche where you feel comfortable.

Hi Laura! :Wave-Hello: Welcome to NeuroTalk!

Sorry to learn of your stuggles with the wee ones. I see that Chemar has kindly given you some starting points, so please let us know if we can assist you in navigating the boards. :)

feeling better
 

Hi laura
again .Still trying to get the hang of this computer lark .just wanted to say thanks to all the people who have welcomed me.please once again bare with me as i no nothing about computers and struggle to write so this posting could go anywhere.lol.Joe is sitting on my knee at the mo saying press that button mummy .Its bad when a 6 year old knows more then you do.I cant put any of them smiley icons in as i dont no how to do it it took me 3 hours to find the full stop lol MY BOYS SEND BIG HUGGS AND KISSES TO ALL OF YOU OUT THERE.and and again thank for letting me no im not alone LAURA

Hi boys!! :D

You're doing fine, Laura. When you work on your next post, to get a smily you have only to click on the one you want and it will appear in your post. Take your time, it will all start making sense soon.

So boys! Do you know how to get out of an elephant's stomach????







You just run around until you're all pooped out. :D:D:D