NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   SCS & Pain Pumps (https://www.neurotalk.org/scs-and-pain-pumps/)
-   -   stop and read (https://www.neurotalk.org/scs-and-pain-pumps/162673-stop-read.html)

eva5667faliure 12-31-2011 11:10 AM

stop and read
 
dear scs users

every once in a while something
catches my attention
when coming to share
blessings
good to hear so many success stories
and then the mutual worry
of the remote
was funny for a moment
i have OCD err on the side of neat
and orderly
so i could just see myself
before i found out my most recent
medical emergency
my breasts will be taken from me
by consent, with a family history
and two test that confirm cancer
right breast positive
so like i was saying
until i rudely interrupted
myself
was and still have my script for
a doctor that deals with
and who
recommended the pain pump
can any one give input
has anybody been recommended
a pain pump
by the way won't be returning to
the doctor who did both cervical
failed surgeries with
additional problems worse than prior
any surgeries he won't own up too
any of the new problems
i can't let him get away with it
called one lawyer
returned my call
who rushed me
and in the end
said no, kept asking
have i seen another neurosurgeon
couldn't explain (not yet)
i have been everywhere
had every test
and complied did as told
i will be the first to admit
i must get my point across
and will be heard
not to many like that
attitude


HAPPY NEW YEAR

fionab 12-31-2011 12:21 PM

So sorry to hear that you've got more medical problems to deal with!!:hug::hug:

I looked into a pain pump before my SCS's, but the dr. who does the pain pump thought the SCS's would work better and he said he had had a lot of problems with ins. companies reimbursing for the medication that needs to be kept up in the pain pump. In the end, because he is such a highly respected pain mgmt. dr. in this area, I went with another pain mgmt. dr. who he recommded and had the SCS's implant a little over a year ago.

I'm glad I went with the SCS's but I think you'll find that there are folks who have had success with pain pumps. Keep in mind that SCS's are strictly for nerve related pain, so maybe that's why others find the pain pumps more beneficial.

Fiona

Rrae 12-31-2011 01:14 PM

Pain Pumps!
 
Hello dearest Eva :hug:
I really wish more people would share on pain pumps! Most discussion here is SCS. There have been a few here who loves what the pump does. Here is a testimony from one of our friends who hasn't been here in quite awhile
http://neurotalk.psychcentral.com/post701979-14.html

Here's one from another member:
http://neurotalk.psychcentral.com/post619491-2.html

AND here's a very informative site thanks to Fiona!
You have to scroll down a way before they get to the pain pump. It does a wonderful job of explaining what it's all about.
http://www.nationalpainfoundation.or...e-technologies

The only negative thing I heard about it (when I asked my Dr about this) was, he said "No, I do not do pain pumps because then I'd have to MARRY you" :eek:....... he, of course, was referring to all the appointments necessary for refilling the pump reservoire.

I hope you are feeling ok today, Eva....the very last day of 2011. Some of us would surely like to flush this year down the commode!

Let's all believe for a new year full of healing testimonials! AMEN

:grouphug: Rae :grouphug:

ginnie 12-31-2011 02:42 PM

pain pump for cervical
 
My vets wife had a pain pump for cervical problems. She had a nurse come to the home to re-fill the device, through the skin on her stomach into the pump. She got good pain control with it. She had to have it filled this way monthly. She had a good insurance program with her animal doctor husband to cover this proceedure. I have not talked to her in a long time, so I don't know how she is doing now. I remember her telling me this was a God sent thing to help her. Her back was very curved with degeneration.
Sorry Eva that you didn't have good success with your cervical spine. My first one didn't work very good eithor. I submitted to the second with a different neruo. Had no choice. I still take medications. I did get better. I wish that had worked for you. Hope there is a solution for that issue with you too. You are really dealing with alot of different medical issues. That makes it really hard on a person. I hope you look into the pain pump. I guess that is alot different from other pain devices, that I have read here about. ginnie

eva5667faliure 12-31-2011 06:02 PM

thanks for imput

still down the road

actually

i would love coming out

with all done

ex cyst in neck

mine is nerve related

as per last ordered emg by him

then at that point
say

you have a multitude of problems

all along he failed and made

it worse

so done with surgeries after cutting out the cancer
thanks much eva

Mark56 12-31-2011 08:48 PM

I hear you Eva
 
It is not easy to submit to more and more surgery. Funny thing, the reason psych evals are required for more serious surgeries anymore and always for pain management implants is to ferret out the unrealistic expectations and supposed "surgery junkies." Gotta tell ya, I cannot imagine being a surgery junkie. Someone who was that way truly would need some psych help.

One of my "friends" in the friends list "bobinjeffmo" has a pain pump. Check his posts, and you will learn of his perspective.

May God's blessings wash over you as freshest of water,
mark56

ger715 12-31-2011 09:04 PM

Rrae
 
Quote:

Originally Posted by Rrae (Post 836803)
Hello dearest Eva :hug:
I really wish more people would share on pain pumps! Most discussion here is SCS. There have been a few here who loves what the pump does. Here is a testimony from one of our friends who hasn't been here in quite awhile
http://neurotalk.psychcentral.com/post701979-14.html

Here's one from another member:
http://neurotalk.psychcentral.com/post619491-2.html

AND here's a very informative site thanks to Fiona!
You have to scroll down a way before they get to the pain pump. It does a wonderful job of explaining what it's all about.
http://www.nationalpainfoundation.or...e-technologies

The only negative thing I heard about it (when I asked my Dr about this) was, he said "No, I do not do pain pumps because then I'd have to MARRY you" :eek:....... he, of course, was referring to all the appointments necessary for refilling the pump reservoire.

I hope you are feeling ok today, Eva....the very last day of 2011. Some of us would surely like to flush this year down the commode!

Let's all believe for a new year full of healing testimonials! AMEN

:grouphug: Rae :grouphug:


Thanks, for the site given by Fiona. Just went thru most of it. Listed it with "my favorites" so I can review it from time to time. Very informative.
Gerry

ginnie 01-01-2012 12:45 PM

Hi mark
 
Something you said, brought up something I have thought about. All those people who want surgery, surgery junkies. They are out there and I never understood this. Who in their right mind would covet all the pain that goes with these proceedures under the knife? I wouldn't do that for all the tea in china. You have to get me screaming and kicking before I go to surgery. I do not submit easily. It baffles the mind. I hope your New Year is filled with Blessings. ginnie

Mark56 01-01-2012 12:51 PM

Bless you as well Ginnie!
 
Quote:

Originally Posted by ginnie (Post 837006)
Something you said, brought up something I have thought about. All those people who want surgery, surgery junkies. They are out there and I never understood this. Who in their right mind would covet all the pain that goes with these proceedures under the knife? I wouldn't do that for all the tea in china. You have to get me screaming and kicking before I go to surgery. I do not submit easily. It baffles the mind. I hope your New Year is filled with Blessings. ginnie

The psych evaluator was the fella who filled me in on such a reality of existence for some. I gotta tell you having HAD to be in the OR 29 times since my wreck to reassemble me, I could easily be perceived thus, but my doc's substantiated all steps, and I did not go happily, except in misery when cauda equina set in..... I so do NOT look forward to the next round I have been told is likely when maximum battery life is reached or something gives out.... no way.

God's blessings on all,
Mark56:grouphug:

ginnie 01-01-2012 01:09 PM

Re: taught me a lesson
 
Never again am I going to complain about my 8 surgeries. How did you endure 29? I don't know what happened to you outside of you saying you were in a wreck. Oh Mark, I can't imagin what you went through. Would you tell me what is cauda equina is? I hope you have all your angels surrounding you, you needed every one of them!. ginnie


All times are GMT -5. The time now is 06:22 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.