such despair
 

I woke up sobbing today. My knees and thighs feel like I have no padding -like I am just a painful skeleton-my elbows too. I am going on vacation and for the first time in my life I am not looking forward to it. Hubby is tired of hearing about it and I dont want to keep complaining but I cant imagine how I will be a year from now? I feel like I have had enough but for now I will hang in there....I wish we could all live in a community somewhere so we would have tons of support!!

Deb

Oh Deb - I'm so so sorry. I hope your vacation is to a warmer, drier place than the NE...although I understand that there is snow in every state but Hawaii right now.

Try to be positive. Not everyone gets worse from year to year...some get a little better, some stay the same.

When you wake up sick can you do what Kathy (Keep Smilin) does - get right up out of bed, take your meds and drink a coffee quickly to get them into your system? I have a different take on things - I get up everyday (unless the killer migraine/headache has me bedbound), and walk my dog with a group of friends for a few miles.

This is my support. I come here often lately, just for a few minutes at a time. It keeps me sane, I don't have any personal friends beyond this board with RSD...I agree, I wish we could be together where we could support one another!!

Have FUN on your vacation - try to rest and relax. XOXOX Sandy

Hi I am so sorry for what you are facing. I can really relate right now. I am trying to just get through each day. I know it is hard to not focus on the future but it is somethng I am trying to do. With this condition there is so much unknown and so things can get better. I understand the family issue as well. I am here anytime if you want an email buddy. I know it is not the same as real time but it can still help. I hope you get to enjoy your trip and who knows maybe you will have some fun times that will lift your spirits. Where are you heading?

TY
 

Thanks for your thoughts and ideas. I am heading to Jamaica - The amt of crap I have to pack because of the RSD is crazy! But, like you said, I will focus on the positives! and take my Vicodin

Hi Deb
 

What a beautiful place to go right now. I hope you have a wonderful vacation and you relax enough to enjoy and get some pain free days. God Bless

Jeanie

Hello Deb....
 

I read all of these wonderful posts and I feel the love..Deb, please know that we care a bunch for you and we CAN..a hundred times over relate to your dreading to go away and woo-hoo have a vacation..!! Whats that??..Punch me in the face now.... I was never a vacationer before well let me say honey..I ain't one now since RSD... but think have you ever not wanted to do something or dread something so bad that it turns out better than you could ever have imagined it???? I am praying that is the case for you this time... Please try to focus on the warmth and give yourself a break...slip a calender in yur pocket...quietly scratch off the days before you'll be home... nothing like our own toilet seat I always say....

I dare think the only, I mean only way one could get me to travel for a wo-hoo vacation right now...is to... be closer to all of you...then we could all sit in one big room with this huge mango kleenex box... share eachothers stories, support and I'd share my coffee with you all..anytime!!

Be safe and let us know how you are doing.... We are your friends....

Hugz...Kathy:grouphug:

P.S Sandy....so nice to read you visit us eachday as we are your friends...so darn sweet.

Oh and Deb... try not to think of next year aand what your illness will be..just live in the moment and enjoy the support around you... Each day is a gift we we can not claim tomorrow... enjoy today, honey!:hug: