Neurological flare ups all thru the day
 

My rsd changes every few months are so.,Ive been dealing with the the anxiety,pressure in my head,heat sweats,headaches,dbl vision,muscle twitching.the list goes on.along with the other problems we all deal with everyday.i use Ativan to help with anxiety and pressure.that helps when it's bad ,like 4 or so intense ones everyday.i take the lowest does there is.i wanted to know who else has some of these issues.and what they do to help these episodes.also the sounds can be unbearable during this time.i will go lay in my quite bedroom and try and clear my thoughts a lot .what brings my anxiety on is ,having a conversation for more than a couple minutes,too much reading,back ground noise,like someone on the phone in a deep conversation.loud deep voices.sometimes if I'm feeling ok I can do a little cooking.im a really good cook,not to toot my own horn.so when I do get a chance to cook ,I have multiple things cooking.the pressure and fatigue starts building up,bye the time I'm done my body has nothing left for awhile.but I love making my wife a great meal every now and then.my point is anything that involves concentrating on something or knowing I have to do a few things in a day,like 2 Drs oppointments,even texting all of this ,I have to take breaks. or anything that causes me to take care of things, can cause this. Also,its very difficult not to be able to enjoy the summer ,when your body holds you hostage laying down with pain ,fatigue and everything else.Im still able to do a little things that I enjoy ,like feeding the ducks while taking a little walk with my wife and dog .i force myself unless I'm in a bad flare.thanks for listening.i hope all you warriors are doing and feeling well .Happy 4Th Of July warriors,take care.

I'm sorry to hear that you are going through this. I've had many of these issues in the past...though not all of them. One tip I learned from another on this board that helped me...particularly with increased pain from certain noises and stress...is to use earbuds and listen to soothing music on my iPod. The ear buds were key to this for some reason as I tried just listening on the speaker and it didn't help. I have what I call my flare up playlist...it's instrumental songs...many from some of my favorite movies and tv shows. I can put my earbuds in, close my eyes, and it really does help. I don't know if you've tried this before but I have found it helpful where nothing else did. Obviously doesn't address all the issues either...but I figure anything is better than nothing. I can post my playlist if you're interested in the types of songs I use on my flare up playlist.

Ear buds
 

Hi carts,thanks for your reply,yes I do wear them ,I was just in the hospital for my lidocaine infusion and started using them,my roommate was so loud and on the phone all the time,put me in a flare and the buds helped out.i will try some of your other tips ,thankyou

I was diagnosed 1998, almost 3 years after onset. I was in pain so much I could not get out of bed, and the RSD/CRPS spread from both knees all through my legs (tippy toes to hips). Both legs. It wasn't until that time that I got put on mild/moderate pain medication (Tramadol). First the drops, then the long release ones. But that only took the sharpness off of the pain.

It took until 2004 until I got adequate pain relief. So in that time, I had a lot of issues with sounds, and not being able to get accustomed to things around me, having a really short fuse, things like that, being angry a lot.

Then 4 years later it spread to both arms/hands. I got and am still getting treatment for that (but it does not affect my legs anymore). I have a pretty severe disability from that.

I think the key sometimes also is adequate pain relief. Anxiety, not being able to stand sounds, I recognize that, but I don't have that so much now anymore, now that my pain is controlled.