insideout
 

INSIDEOUT-BMW 12-07
Pain is hard to express,
When invisible to all the rest.
Looking “normal” in every regard,
Though my lip feels burnt and charred!
Biting breeze, a clawed up mess,
Wonder if there’s hanging flesh?
I touch my face even though
Electric jolts will shoot I know.
Still I poke, test this pain.
Searching for limits again and again,
Twitching jaw I can’t stand.
I hold it still with my hand,
Praying the leads won’t further move…
When my nerve is in a groove.
Been on all the medication,
Thank my guide for meditation
Doctors are at wits end
Thank my God for my friend’s
The world doesn’t understand this much
Thank God for healing touch.
I don’t think there IS a cure.
I believe but I’m not sure,
The answer is inside of me.
To accept what must be,
Learn to cope and how to react.
When the monster begins to attack,
And pass along, yes need to share.
To hear that another dose care…
To say you’re not alone,
Living in the face pain zone.
Invisible to most but not to “us”
We have been thought some incredible stuff.

Great post Burnt! TN pain? - AWFUL!

You're definately not alone.

<<Biting breeze, a clawed up mess,
Wonder if there’s hanging flesh?>>

GREAt description! WOW!

Thanks for sharing that

thanks... intresting name ya got WYND HA HA... :) ha haaaa :ROTFLMAO::ROTFLMAO:
Peace
BMW

wow what a moving poem I imagine many can relate to parts if not all of that poem that was wow

Burnt, I have never seen such a precious poem about TN !! It explains it all, when we have to TELL others we're in pain...when we grab our face and tears form in the eyes, etc.

thank you both . corky you know how hard it is to get people to understand this . I go to a writing group once a month the group part is fine but after everyone goes for a bite to eat and gosh I am still trying to get over the eating thing.
food just isnt my bag everyone will be sitting around feasting on yummies and I argghh the inside of my mouth just . It is just diffrent for me.:( everyone will be asking what is the matter and I am tired of trying to explaine myself. I dislike the pitty and dislike the fact no one really gets it. I have to use face cover when it is breezy or windy out a bandana usualy I look like a bank robber...I like plastic over metal silver wear I hate using a fork I need a straw to drink as glass or temp of liquid on my lip starts my flare ups... ects but i look normal ...you know corky.... I just stick out and usualy do not join in on that part of things. but I have made a dear dear close friend at the group. I think God sent her . she has helped me so so much . and because of her I was able to write this poem. I have much gratitude when i hear that someone else likes it understands it. though i wish no one ever had or has to experience this, I know that others do. and so this poems is FOR ALL OF US . Even those who do not have T.N. for everyone who has pain invisible to the eye :). my heart felt thanks .
Peace and Love
Tina...BMW/Burntmarshmallow

oh yeah forgot to say appreciate the chatting in the chats you ladies are tops ! :hug:
Peace
BMW