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-   -   What are the good things MG has brought to your life? (https://www.neurotalk.org/myasthenia-gravis/66995-mg-brought-life.html)

miachris2 12-20-2008 10:33 AM

What are the good things MG has brought to your life?
 
I used to be pretty anti-internet except for research for school. Then I realized how much good it has to offer, my example is it helps people who are isolated whether geographically or by life's circumstances. Recently I even joined Facebook. On it was an MG group and the first question they asked was really suprised me because it never crossed my mind...The question was how has MG affected your life in a positive way?

I'm still chewing on this question but I can definately say that not being able to speak has caused me to really, really, really listen to what people have to say.

Any other thoughts?

PS - My psych appt is today...yeah

MissyGirl 12-20-2008 11:46 AM

The only positive thing it has done has been to fill my health insurer's pockets! I have not one positive thing to say about MG!

erinhermes 12-20-2008 01:34 PM

OK - here goes!!!!!
 
Well, having MG stinks, but it HAS given me an appreciation of my good days.....:D

Before MG, I took my good health for granted - something I will never do again! It has also made me realize how short my life is and how I should try to enjoy every moment I have - cuz' you never know!

Having an incurable disease stinks, but I am much more appreciative of EVERYTHING and EVERYONE!:D I throughly enjoy just hanging out with my fellas, taking care of them and spending time with my loved ones:D......

In a crazy sort of way I guess I never realized how lucky I was until I was struck with MG.

People tell me all the time how depressing it must be to have MG, but in MY humble opinion I am now fully aware of how precious life is and how blessed I am.....................:D

I also joined Facebook to meet people with MG - where did you find them?

Happy Holidays!
Erin:D

Gabe 12-21-2008 01:56 PM

I think it taught me that it is ok to listen to my body and not to be ruled by the needs of others ... It has given me a reason to relax and enjoy people rather than always trying to fix everything... It has given me an appreciation for all of the people who struggle with chronic illness - many of them far more serious than this one... It has made me grateful for the opportunity to live with a chronic illness rather than dying from a fatal one for which there are no treatments - It has made me realize what a gift life is - and I intend to live every day until I die rather than lying down quietly and giving up before my time. "Seize the Day" actually means something now...I do what I can when I can and I rest in between - hopefully creating memories for the days when I just have to rest!

Scots Kat 12-21-2008 05:52 PM

Hi miachris2

I too am a member of a few facebook MG groups and I'll repeat what I posted as my positive experiences here:

I guess the way my MG has affected me in a positive way has been that it has allowed me to feel success after achieving challenges. For example, last year [now three years ago] when my husband and I moved to Scotland we visited a city called Stirling. There is a huge monument there to remember William Wallace (think Braveheart if you aren't sure who that is). I climbed to the top of the monument - 246 spiral steps. A huge accomplishment considering some days I freak out trying to cross the road!!

As a teacher, I also think that it has made me more aware of students' limitations and has helped me to really focus on encouraging students to achieve all they can.

So that was my post from awhile ago and I think it is still true for the most part. Last year I hit an all-time low and I'm still trying to recover from it. Today in church the minister was talking about how your faith can carry you and Jesus won't let you fall and I just looked at my husband and with tears in my eyes said "then why did he let me fall so many times?" MG is so frustrating and I don't know why I have it - I know there are worse things but it is so hard to cope sometimes.

Anyways, this is supposed to be a happy post - not a sad one.... I still really agree with what I wrote about the student's limitations. Sometimes you forget all the things these little people have going on in their lives and it's easy to get upset about little things. MG has taught me to (try) slow down and appreciate everyone for their talents.

Happy Holidays everyone!
~Kathy


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