NeuroTalk Support Groups - Advice for evaluation in Denver

Hi everyone,

I am currently in PT for suspected TOS (type unknown) on my left side. My ortho doc did no testing; just an office exam and sent me to PT. Trigger point therapy, heat and massage are helping very short term, but symptoms come back quickly.

Symptoms include horrible armpit pain/deltoid pain when I move my arm laterally and back, tingling pain top of hand, bottom of hand on ulnar side, left hand fatigue when doing any type of sustained activity. Sometimes I will have a sharp pain in my neck radiating upward, with numbness on left side of jaw and into my face.

I feel I should get this evaluated by an experienced TOS doc. I've read threads about Annest, Brantigan, Sanders. I live near Denver, but all are out of my insurance network. Is one better than the other? Also, regarding testing--it sounds as if I need an MRA with arms up to look at bloodflow? Anything else? My entire spine has been MRI'ed in the past, so if I had extra ribs, wouldn't they have shown themselves there?

I just had a brain MRI that showed the first few cervical vertebrae--my neurologist yet again looking for MS (which I don't have!!) Looks good, no issues. Clear spinal tap as well.

Thank you for your help. Seems as if my entire neurological system is screwed up!!! :p