Neurogenic bladder
 

Today I was at the urology clinic. I had my bladder scanned to see how full it was, 999 ml. So then you have to try to pee to order in a storage contraption, it measured my output as 984 ml. Then another scan showing just 66 ml. So the nurse was saying we ought to try cutting down fluid intake to stop bladder filling so big etc. but she said we could try a catheter incase that didn't work, also for me to see what it was like. So I did the deed and the bag kept on filling to 300 ml. She was shocked that there was that amount as the post void scan said my bladder was empty yet it wasn't.
So I'm now doing catheterisation 4 times a day and I need to go back in 6 weeks to see if the capacity has decreased any.
She said it was a definitive diagnosis of neurogenic bladder.
It wasn't nearly as bad as I had thought it would be and the catheters are really quite small as I don't need to use any with a bag on as soon as I can manage by touch alone.
Next hurdle is seeing physios for my low **** tone as my gp decided to just check since I was having bladder issues! The present of nerve damage just keeps on giving!
The new way to get a physio appt. sucks though. You have to call something like NHS 24 and tell them your symptoms, they decide if you should have a physio appointment, even though I told them that my gp wanted me seen as soon as. I have been waiting for an appointment - from my health board - for almost 6 weeks. What ever happened to self referral to your local physio dept?!
So if there is anyone travelling this particular road, don't be to harsh on yourself, don't fret because it's really alright!

Hi Blairzo,

So sorry you are having to deal with this along with your other issues. For my Sins I have continence problems, started Neurologically, accelerated (rear) by Cancer, then both aggravated to the extreme by Radiotherapy burning everything up. Any sort of problem 'down there' is a pain in the proverbial. I feel for you.

I had no idea Physio access had changed here, not that I could/would avail myself again after previous misguided treatments left me more damaged and my Hypersensitivity stops any physical contact at all. Still, it is typical of the Govt to 'fix' a system that wasn't broken.

Dave.