Need answers and help
 

Hi, Im Bethany and I have suffered from MS/peripheral neuropathy symptoms for the past 4 years. symptoms mostly right sided. sarted with problems swallowing, like something in throat at 19 yrs old, then leg and foot numbness, arm and hand numbness, 24/7 dizziness (drunk feeling) blurry vision, all ear symptoms: ringing, popping everytime I swallow, loss of hearing a bit on that side, and fatigue all the time. been to ents, neuro. had mri on head only and said I didnt have MS. But i read it can be on spine as well which when I mentioned it to him was like I disagree with that and just diagnosed with peripheral neuropathy. But I dont have just feet or arm symptoms like most people ive read that have this have..Its a whole side of my body down to that side of my tongue. Its not completely numb thank God, but numb enough. My balance is so off bc of the dizziness and numb leg. Im at a loss and really want some help! been on valium for 4 yrs with this. doesnt help. my symptoms are non stop. always there. horrible and I pray all the time that I'll find help. Ive been trying to eat more veggies and stay away from gluten. I take B12 1200 but I agree with what someone else said ab it...it does make me feel more dizzy whe I take it..so I dont know if I should cut my dosage in half or what. Im going to start vit D, but have to get blood test first to see what dosage I need. If anyone has the same symptoms or close to me, please let me know. I have not come across a person with the exact symptoms as mine. And for them all to be 24/7. not a second without the awful dizziness. thats the worst part. any tips would be appreciated. *edit* if anyone can relate. :confused:

My condition is not like yours but I would suggest reading this forum top to bottom, especially the supplements post. There are so many things that work, you have to try and try again, cause everyone is different and some things help some people and not others.

Most important, don't give up. Nobody will care about you as much as you so be diligent to keep looking for answers.

good luck

Have_a_complete_nutrient_panel_done.__get_testing_ done_for_celiac.--good-luck

Hi Bethany,

Welcome to the boards. I can sympathize with your frustration with no clear diagnosis. My symptoms are primarily left-sided.

From what I have read, a complete work-up for MS would include evoked potentials, a spinal MRI (as well as brain, which you have done) and a spinal tap. Your neurologist should be the one ordering these, and since your symptoms are constant, I would be inclined to get a second opinion from a different neurologist. Do you get headaches often? Dizziness/ear syptoms and facial/tongue numbness may fall under the atypical migraine umbrella. I had these symptoms, but on the left side, and have gotten some relief from a med combo prescribed by my neuro.

Nutritional baseline labs are a must. What labs have you had, and was anything abnormal? Most important seems to be B12 level, vitamin D, thyroid panel, chemistry and complete blood count, test for celiac, malabsorption studies.

Again, welcome. This board is a wonderful place for support and information.