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-   -   is it possible to be in remission and..... (https://www.neurotalk.org/multiple-sclerosis/41795-remission.html)

mommywms 03-21-2008 04:27 PM

is it possible to be in remission and.....
 
Is it possible to have a normal neruo exam and still have ongoing sx?

My sx are numbness,and pins & needles on my feet,buring in my face,and severe fatiuge...
is this possible to have a normal exam,and still have these sx?:confused:

Catch 03-21-2008 05:21 PM

I guess it depends on what you mean by "normal" neuro visit.

I could go to my neuro any day in the past two weeks and basically come away with "nothing new to report." But every day I have pins and needles on the bottom of both feet (most days it comes and goes, today it has been constant for the first time). I also have blurry vision nearly daily, and I get needles and pins in my fingers and hands. While these are relatively new symptoms, since they generally only last a few minutes or hours of every day, they aren't relapses. Then I also have my chronic things, like the burning in my legs and arms.

If that's the kind of thing you mean, then I guess the answer would be yes.

Hope that helps!:D

sugarboo 03-21-2008 05:31 PM

I was just sitting here thinking....stupid feet!!!

I've got alot of pins and needles in my feet and ankles today....nice timing mommy!!

I bet I could go to the neuro today and he'd just have to trust me that I feel it...:p

cat265 03-21-2008 06:23 PM

I just wanted to offer a little advice:) Iam sure many of you are aware of it anyway but.... Low b12 levels can cause all of those symptoms as well. A level below 400. I think I read some place that people with MS may also end up with low levels of b12, but I am not 100% sure of that one.

Snoopy 03-21-2008 06:26 PM

Your symptoms seem to be sensory and I think it would be possible to have sensory symptoms and yet the neuro exam is normal but that's just my unprofessional opinion ;)

Since my first neuro exam 22 years ago mine have never been normal - depending on exacerbations the neuro exams can be better or worse but never normal.

karousel 03-21-2008 06:26 PM

I have permanent sx's that have been around forever. Some days they are worse than others. I have not had any new sx's or a flare in 14 years, and my neuro exams have been the same normal for me.

sugarboo 03-21-2008 06:27 PM

Hi cat...Don't know about the others, but I've been checked for it all, including the B12....but its good to get that info out there frequently.

mommywms 03-21-2008 06:47 PM

thanks guys.
I think normal means normal for me,but im no sure.
I have been wondering this since my last neruo visit in august.
I was thinking maybe the sx are all in my head..LOL
maybe Im just to caught up with the sx,and its really not there.
Ive been wondering if it is possible,but really didnt know.

my ongoing sx are mainly pins & needles in my feet,but it just used to be a winter thing,but its 70 degress here the last 3 days,and they are still hurting.
thanks so much guys,now I dont feel so crazy,
hugz,
aly

the Bird 03-21-2008 09:05 PM

Yes,

you can be in remission and still have sx, even in RRMS. Remission does NOT mean to be sx free.

http://www.msfocus.org/info_symptoms.php

This page explains it to some degree. I am in remission and I have several ongoing sx....

lady_express_44 03-21-2008 10:48 PM

Generally our neuros will evaluate our Functional Systems:

http://www.thjuland.net/edss-fs.html

From that they determine our EDSS (Expanded Disability Status Scale), on a scale of 1 - 10 disbility level:

http://www.thjuland.net/edss.html

We can be in the midst of an attack, especially if it is a mild sensory one, and show no increase in disability. Sometimes sensory symptoms (like numbness) don't effect other functions (they just feel bad), but other times this kind of attack can effect our bowels/bladder/mobility, etc.

What makes you think you are in remission though, when you are currently experiencing "new and/or worsening of existing symptoms"?

Cherie


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