NeuroTalk Support Groups - im new i feel old but only 38 yrs old!

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - im new i feel old but only 38 yrs old! (https://www.neurotalk.org/peripheral-neuropathy/197194-im-feel-38-yrs.html)

im new i feel old but only 38 yrs old!

fatigue and all the problems with sfn have me down

Welcome gabenukem :)

From what I have read on this site....there are some as young as 20 that have this. I'm 51 and was diagnosed with small fiber via a skin punch biopsy in Sept of this year. Results were 0 A and C nerve fibers in my feet.

How long have you been diagnosed and what are u taking for it ?

Lots of good people on here with information and support.

I'm sorry you are having hard time. And u are correct, the fatigue, pain and not being able to do anything can drive a person crazy.

Please tell us about yourself....more people will be coming along after me to offer u their help.

Here's a hug :hug: We'll help u through this :)

Debi from Georgia

38 is young, although my neuropathy symptoms did start in my 30's, I didn't recognize them as such. Then I was so afraid it was diabetic neuropathy that I was afraid to tell the doctor my toes were completely numb. The numbness has moved up to above the knees now.
What I did have was clumsiness, high arches, and absent reflexes since childhood, which all turned out to be part of hereditary neuropathy. I didn't actually find this out until I was 47. I am 51 and partially disabled now, I walk with a hiking pole or two and use a wheelchair for long distances with stop and go like museums, airports, etc.

Does anyone in your family have symptoms? CMT or hereditary neuropathy can show up at any age, and many people attribute the pain and disability to other causes- arthritis, varicose veins, aging, etc.

If not then perhaps a treatable cause can be found. Are you just looking for commiseration rather than information? I would recommend reading some of the books out there on chronic illness, my favorite is Sick and Tired of Feeling Sick and Tired? by Paul Donoghue and Mary Siegel. Cognitive behavior therapy has also been found to help a lot of people.

How is your support system? Does your family acknowledge your suffering or dismiss it? This can make a huge difference for you, but no matter the circumstances the fact is this gets to all of us sometime, regardless of how resigned we are.

I just saw that you included more info in the question about heavy metals. I hope that someone who knows more about that will put your posts together and respond more helpfully than I have

Quote:

Originally Posted by gabenukem (Post 1029481)

fatigue and all the problems with sfn have me down

I'm 29 just diagnosed, but I may have had PN for a couple years…I have other health problems also so yes I feel very old and most people don't understand.

it will get better

The PN may not get better but there are a lot of people on here who will help you along the way. Never feel shy about putting a question, concern or fear on the site if you don't believe me go read somebof my post yet I get an answer so WELCOME my friend we will all walk this crooked road together:grouphug:

Quote:

Originally Posted by gabenukem (Post 1029481)

fatigue and all the problems with sfn have me down

I am 36, so I get it. Diagnosed this year with autonomic and severe sensory neuropathy. My life has changed drastically in the last year. I go to bed when my 5year old goes to bed between 8 and 830. Get up at 5. The added sleep seems to help some. You will adjust, and learn your new way of life.