Newly Diagnosed I think
 

Hi all, After 4+ years of not getting any answers I have been recently diagnosed with RSD. However (and this raises doubts with me) I DON'T feel heat and pain, I get the opposite; ice cold and tingly and I sweat profusely. I am a patient of Dr. Shwartzmans group and have actually been put on a fast track for Ketamine, but now the doctor isn't sure about that treatment either. What I would like to know is are there any other people with this that have similar symptoms? Or am I a true oddball? :confused::confused:

Juliette
 

Hi
I get both cold in my fingers and heat in my arms and hand with tingling Im also confused only recentley been tolds I have RSD. I break out in sweats mostley when the pain is bad. what Im also noticing is when doing e-mails I miss out alot of letters on the words Im typing in never had a problem with this before.

Sweating is a common rsd thing, as is the skin on the limb feeling cold and color changes of the skin as well. I know many who also feel cold. Not everyone feels the burning pain of rsd. I didn't for months and even now 6 yrs later I rarely feel it. It flares up for a few minutes and I may not feel it again for days or weeks. Sensitivity to touch or air is an rsd thing but as with burning, you may not have it. Some people don't have it and develop it later. I had it only to air and 3 yrs ago developed touch sensitivity.

Each one of us with rsd is different in the things we feel, just as we have things in common. It's as individual as we are because none of our bodies work the same way. This is the reason why things can be so different for everyone.

I'd wonder why ketamine so fast though? Have you had any blocks or other treatments first?

Memory and concentration issues are also common mostly because of the pain that messes up the wiring in our brain, sometimes meds can make things worse and rsd itself changes nerve endings and the brain as well.

Hope some of this helps!

Hugs,

Karen

I'm not sure why they want to try Ketamine so quick either. One thought is that last time I saw the Neuro I had a really bad flare up right in his office. My right side turned white and ice cold and when you touched me it felt like a tickle and me twitch. Honestly it couldn't have happened at a better time especially since it was my doctor and four of his students there. I have also been diagnosed with PLMD at night but that is strange also since only my right side moves at night. My left side stays still while mt right arm and leg move and I don't wake up at all. The meds they put me on to stop the movements stopped them alright, problem was I kept waking up every few minutes so they took me off. Right now the only things he has me taking are Nortripttline and Klonopin.
Thanks Scott

Early ketamine treatments can and may put your RSD in remission. Most info I've read on the subject is the earlier the better, but no guarantee.