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-   -   MVD surgery (https://www.neurotalk.org/trigeminal-neuralgia/160712-mvd-surgery.html)

richardfalls 11-13-2011 03:40 PM

MVD surgery
 
Had MVD surgery on Set.26th, for TN had fluid on ear after surgery & ruptured ear drum, now eperiencing sound of heart beating in ear.Has anyone else had this problem?

EE03 11-13-2011 09:27 PM

Quote:

Originally Posted by richardfalls (Post 824431)
Had MVD surgery on Set.26th, for TN had fluid on ear after surgery & ruptured ear drum, now eperiencing sound of heart beating in ear.Has anyone else had this problem?

I haven't had an MVD, but I have had a ruptured eardrum and I do get the heart beat in my ear whenever my ear is full of fluid. I wonder if it is something to do with the rupture or the fact that the eardrum has ruptured as opposed to the MVD.

richardfalls 11-14-2011 08:12 PM

Quote:

Originally Posted by EE03 (Post 824502)
I haven't had an MVD, but I have had a ruptured eardrum and I do get the heart beat in my ear whenever my ear is full of fluid. I wonder if it is something to do with the rupture or the fact that the eardrum has ruptured as opposed to the MVD.

I I don't know. went to ent eardrum is healed,had mvd on left side,right eardrum was ruptured. The noise is in the left ear where the fluid was.

Zatochi 11-19-2011 07:04 AM

Quote:

Originally Posted by richardfalls (Post 824734)
I I don't know. went to ent eardrum is healed,had mvd on left side,right eardrum was ruptured. The noise is in the left ear where the fluid was.

Hello richardfalls. I had MVD surgery in June of this year. Mine was on the right side and I did lose the hearing in my right ear for about a month and a half after surgery. I could also hear my heartbeat in that ear. It was very annoying. My hearing has returned to normal and the best thing of all is that I no longer have the TN pain. As soon as I get weaned off of the Carbamazapine I think I'll be pretty much back to normal. :)

Mylastnerve 11-22-2011 03:30 PM

Hi,
Google "pulsatile tinnitus" - here's a brief article:

http://ezinearticles.com/?Pulsatile-...ype?&id=442557

Best wishes,
Lily

richardfalls 11-24-2011 06:59 PM

Quote:

Originally Posted by Zatochi (Post 825887)
Hello richardfalls. I had MVD surgery in June of this year. Mine was on the right side and I did lose the hearing in my right ear for about a month and a half after surgery. I could also hear my heartbeat in that ear. It was very annoying. My hearing has returned to normal and the best thing of all is that I no longer have the TN pain. As soon as I get weaned off of the Carbamazapine I think I'll be pretty much back to normal. :)

I'm glad to hear you are doing better, thats encouraging. I had my surgery on Sept. 26th, at Wake Forest Baptist, by Dr. Thomas Ellis. The surgery was a success, no more TN pain & been off Carbamazepine & lyrica since three days after surgery. I just still have a problem with fluid & sound of heart beating in my ear, & numbness in my face & ear area. Still experiencing fatigue & weakness after working all a day. I guess this is normal just very annoying, but alot better than dealing with the pain. I'm going back to Dr.Ellis & ENT Dr. in January, hopefully they can get this straigthen out or it will get better on its on. How long were you in surgery? My surgery took a little over 2 hours, had 1 blood vessel on nerve & 1 artery close to nerve.They removed the vessel & placed teflon between the nerve & artery. Hope you continue to get better & get off the meds.

Zatochi 11-25-2011 08:01 AM

Quote:

Originally Posted by richardfalls (Post 827358)
I'm glad to hear you are doing better, thats encouraging. I had my surgery on Sept. 26th, at Wake Forest Baptist, by Dr. Thomas Ellis. The surgery was a success, no more TN pain & been off Carbamazepine & lyrica since three days after surgery. I just still have a problem with fluid & sound of heart beating in my ear, & numbness in my face & ear area. Still experiencing fatigue & weakness after working all a day. I guess this is normal just very annoying, but alot better than dealing with the pain. I'm going back to Dr.Ellis & ENT Dr. in January, hopefully they can get this straigthen out or it will get better on its on. How long were you in surgery? My surgery took a little over 2 hours, had 1 blood vessel on nerve & 1 artery close to nerve.They removed the vessel & placed teflon between the nerve & artery. Hope you continue to get better & get off the meds.

I'm sure the hearing will come back soon and the numbness should go anyway on it's own. Yea, I had what felt like fluid in my ear too. I was told to expect some temporary hearing loss at my pre-op appointment. I was also told that the surgery would be about 2 hours long but it actually turned out to be 6 hours. My brother was told by the surgeon immediately after surgery that I had multiple blood vessels "tangled" up with the nerve. That was the word he used. I also have some teflon padding. 2 weeks before surgery, I got to where I couldn't chew food without causing an attack so I had my brother put a small package of crackers in his pocket before surgery. As soon as I came to in ICU, I had him give one to me and I chewed it no problem. One of the happiest days of my life and that was proof that my problem was fixed.

It was about 2 months before I could actually go to work due to some bad headaches I was having. I'm still having some occasionally but they have gotten better. Neither my neurologist or my neurosurgeon know why I'm still having them but that's the only problem I have left due to the surgery.

I find it strange how so many people have to deal with TN and are never offered MVD surgery. I had TN for a year and really don't think I could have lived with it any longer than that.

I hope your condition clears up soon....take care.
:)

richardfalls 11-26-2011 10:19 PM

Quote:

Originally Posted by Zatochi (Post 827462)
I'm sure the hearing will come back soon and the numbness should go anyway on it's own. Yea, I had what felt like fluid in my ear too. I was told to expect some temporary hearing loss at my pre-op appointment. I was also told that the surgery would be about 2 hours long but it actually turned out to be 6 hours. My brother was told by the surgeon immediately after surgery that I had multiple blood vessels "tangled" up with the nerve. That was the word he used. I also have some teflon padding. 2 weeks before surgery, I got to where I couldn't chew food without causing an attack so I had my brother put a small package of crackers in his pocket before surgery. As soon as I came to in ICU, I had him give one to me and I chewed it no problem. One of the happiest days of my life and that was proof that my problem was fixed.

It was about 2 months before I could actually go to work due to some bad headaches I was having. I'm still having some occasionally but they have gotten better. Neither my neurologist or my neurosurgeon know why I'm still having them but that's the only problem I have left due to the surgery.

I find it strange how so many people have to deal with TN and are never offered MVD surgery. I had TN for a year and really don't think I could have lived with it any longer than that.

I hope your condition clears up soon....take care.
:)

I had TN for 2 years,didn't get offered MVD surgery until I told neurologist ;I wanted off meds & have quality of life back. That was the key word quality of life. I was then referred to the neurosurgeon Dr. Ellis. I was referred for the Gamma Knife procedure, but chose MVD for long term. I went back to work in 6 weeks,the first two were very tough!! Work is getting a little easier; but still feel like I'm only about 70 percent. When I shaved & went down the river in my bass boat this caused alot of my flare ups of TN. I haven't had many headaches since surgery, but I do get them for a minute when I bend over.This may be coming from the fluid on the ear.

Hope you are doing well.

Zatochi 11-29-2011 08:05 AM

Quote:

Originally Posted by richardfalls (Post 827851)
I had TN for 2 years,didn't get offered MVD surgery until I told neurologist ;I wanted off meds & have quality of life back. That was the key word quality of life. I was then referred to the neurosurgeon Dr. Ellis. I was referred for the Gamma Knife procedure, but chose MVD for long term. I went back to work in 6 weeks,the first two were very tough!! Work is getting a little easier; but still feel like I'm only about 70 percent. When I shaved & went down the river in my bass boat this caused alot of my flare ups of TN. I haven't had many headaches since surgery, but I do get them for a minute when I bend over.This may be coming from the fluid on the ear.

Hope you are doing well.

Wow, back to work after 6 weeks? Maybe that was too soon? I'm not sure because I never asked my doctor what the full recovery time is. After 2 months I made the decision on my own and started working again. I also feel totally exhausted after working an 8 hour day. I have tried to stop taking my Carbamazepine (Tegretol) but if I go under 300mg a day I start to get some tingling in my cheek and lower lip. At least I have gone down to 300mg a day from 1000mg a day. That is the only medication I'm still taking. I have not had any of the severe TN pain though.

My doctors discussed possible Gamma Knife but instead decided on MVD surgery. I'm not sure what the deciding factor was. The 3 months prior to surgery was just a blur anyway. I'm sure it was because of all the meds (Carbamazepine, Baclofen, Amitripyline, Alprazolam and Lortab) I was taking at the time.


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