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-   -   Narcoms (https://www.neurotalk.org/multiple-sclerosis/44592-narcoms.html)

freeinhou 04-29-2008 05:49 PM

Narcoms
 
The spring NARCOMS questionnaire is out. All members (NARCOMS) - I encourage you to take the time to fill it out.

If you're not a member - ask. I might be successful in getting you to be a member. I can probably provide accurate directions... Don't worry - it's free.

NARCOMS = north american something something something MS. Cool magazine. Tells ya all the trials going on. Database is ~ 36,000. Roughly 12 years old. Maybe older.

Tom

SallyC 04-29-2008 06:09 PM

Quote:

Originally Posted by freeinhou (Post 269176)
The spring NARCOMS questionnaire is out. All members (NARCOMS) - I encourage you to take the time to fill it out.

If you're not a member - ask. I might be successful in getting you to be a member. I can probably provide accurate directions... Don't worry - it's free.

NARCOMS = north american something something something MS. Cool magazine. Tells ya all the trials going on. Database is ~ 36,000. Roughly 12 years old. Maybe older.

Tom

I'm a member, but haven't received a questionaire, yet..:confused:

Blessings2You 04-29-2008 06:25 PM

My email just came last night, and I filled out the survey right away, before I got sidetracked. (Who, me?)

I was happy to do the survey and hope others will also, but I will admit that it was a big reality check to see the progression of my disease in black and white. Yeeks.

wkikta 04-29-2008 08:51 PM

My thoughts exactly while answering the questions last night. Really makes you aware of how you are doing.:(

Twinkletoes 04-29-2008 09:23 PM

North American Research Committee On Multiple Sclerosis (NARCOMS)
 
Thanks Tom! I had no knowledge of this, but will definitely fill out the questionnaire.

Here is where I found the info: http://www.mscare.org/cmsc/CMSC-NARC...formation.html

Here is where you actually register: https://narcoms.emergemd.com/Login.a...okie_test=true

AfterMyNap 04-29-2008 09:44 PM

Thanks, Tom, I didn't get my email yet. Maybe I'll just be proactive and go do the deed first thing.

Everyone do it! This is really important to all of us and all of those who face MS in the future!!!

RedPenguins 04-30-2008 12:11 AM

Thanks...
 
Thanks for the link...but gosh, that was depressing!! :(:Sob:

greta 04-30-2008 08:09 AM

And the info really does serve a purpose! I got asked a couple of months ago to participate in a separate research survey based on my participation in NARCOMS. It's nice to know that something good can come out of having a cruddy disease.

sassy 04-30-2008 12:19 PM

Yup, did mine yesterday but thanks for the info Tom!

ewizabeth 04-30-2008 12:22 PM

Did mine a couple of days ago! :)


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