Why Their is a Huge Problem
 

Hi Everyone,

Artist and some others as well do alot of research. Let me tell you don't just come across studing this stuff in 5 minutes. I for one have studied as well, with very little appreciation.

She is very knowledgeable in the medical field in general, with the common sense to go with it.

People have been in very rough shape here and she bent over backwards for them, which I have seened over and over again. She is a huge asset here.

One thing I really appreciate is when someone doesn't agree with me, then I can give it more thought and be very thankfull for their tips and suggestions.

Does it really help me if someone says they are sorry about my rough day?
Much Love, Roz

I know what you mean, Roz. Some of us here (me included) do a lot of reading and research and it definitely isn't learned in 5 minutes... it's hours upon hours!

I appreciate your reading and research as well... you have found so many great pieces that I hadn't found yet. Thanks! :hug:

Sending you pain free hugs! :hug:


P.S. and many thanks to my dear Artist!

we sure do appreciate artist, Roz and all of you here very very much!

The essence of this forum is always the deep and genuine support, as well as the wealth of info and knowledge and experience that so many of you have

I know many of you been together as a support group for a long time and you have sure built an amazing foundation for others to be able to also grow on

so

onward and forward eh!
Cheri :)

Hey Roz,

I always think and am thankful of the RSD reserach bunnies - Molly, you, Micheal, Artist, Vicc to name but a few of you! I know that everyone in this forum would bend backwards to help jump through the hoops to help people get a better quality of life.

However, some days I need a virtual hug, or the chance to just scream about this - I know it doesn't cure me, but it gives me the chance to vent, pull myself together again psychologically and keep plugging along with it. However, long term the research is so important, to suggest a new way of understanding RSD and hopefully of understanding and creating new treatments...

I know that the research bunnies do feel unloved sometimes - because I guess, we are so used to having awesome people who are motivated to understanding the nervous system, to understand blood flow, neurology, immunology and every other ...ology until an understanding of RSD arrives, that we get lazy and stop saying thankyou and take them for granted.

So.... to all the wonderful research bunnies

I Love you all so much and you are doing a brilliant thing - and every piece you find increases your, and our, understanding of RSD.

and... a vote of thanks to all of you bunnies!!

Love you tons

Frogga xxxxxxxxxxxxxx

PS - hope this makes sense!

I certainly appreciate your research
 

Just wanted Roz and Artist and others to know that I truly appreciate their research. I really look forward to that part of the forum as I want to learn as much as I can. Unfortunately, I am not very computer literate with research on the internet or have the knowledge to provide links, etc. I am clueless and really should learn as I know I am capable. It is just a matter of finding a friend or someone to instruct me.
Sorry I just ask questions or give support but I really would love to join in the research part as well. That was part of my previous job - before computers and the incredible capability of the internet.
On another support group site someone posted infor on the recent approval of lyrica. They detailed the study itself which was quite fascinating in the # of drop outs, and the # of peoople actually helped, etc. However, on that site you could not post links or do PM's. Thus I don't know how to get to the study. Someone tried to help out on the FM board but that was just basic info on the approval itself.
I am so happy for this forum and neurotalk where you can do links , PM and have the wonderful people such as yourselves to help us with the research. I do appreciate it.
Sydney

:hug: hugs for you roz

i am not a big one on using the thank you button. shame on me i guess. i try to make a little post to do the thanks. life has thrown me some curve balls lately and i haven't been able to do those posts.

but....try and look at the number of views your posts are getting. so many people who are not registered members are recieving valuable information all on one forum...because of all the research you and the other do here. same for the members here.

i LOVE to check out the links that are posted.

the support threads are just as valuable. it shows how compassionate the members are. it lets others know they are not alone.

i am so thankful that you and others can grasp the full scope of what rsd is. your explanations and the links have been so helpful to me. for those who are new to rsd..or don't have rsd....i';m not sure if even saying thank you is enough.

but thank you. :hug:

I also would like to thank you for all the research that you have done and posted for me. Until a few months ago, I didn't know much about RSD. When my 1st doc mentioned that he thought I had it, I thought he was implying that the pain was in my head and not real. after joining the board, I found out what he was saying and it made me feel better about myself. I just misunderstood what he was saying. Everyone here has helped me with the understanding of this problem, and allowed me to vent, worry, console, and talk to others.
Mary

Hey, thanks all of u :hug:

Thanx to *everyone* who contributes to the researching, and to *everybody*for making this a truly unique forum.

Can't use my hands much at the moment, jarring triggers the RA/Sjogren's thing which is in severe flare right now. Sorry all, and thanks mods.

Good to see some book/research posts back on,
:hug: :hug: (special big one for Roz..) xxx

Hello everyone. If I haven't said it before here is a big THANK - YOU to everyone here.... to those who spend hours sharing their reseach as well as those who offer emotional support there are no words to express my gratitude. My doctors have told me NOTHING about RSD. All they have told me is that I have it. Everything I have learned about this condition has come from the RSD sites and from talking to all you kind folks. This forum has been a godsend to me. There is not one person here that I don't value and appreciate.So, Please keep posting. I still have so much to learn. Jeannie