NeuroTalk Support Groups - FYI Medication

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- Gluten Sensitivity / Celiac Disease (https://www.neurotalk.org/gluten-sensitivity-celiac-disease/)

- - FYI Medication (https://www.neurotalk.org/gluten-sensitivity-celiac-disease/3221-fyi-medication.html)

I had contact PAR 1-828-9393 about Meclizine 12.5 mg (generic for antivert). Mark said that the starch used in the product is corn and potato but they can not guarantee any cross contamination with Gluten in the mfg process. The company will look up any drug they make for consumers but they are only open during normal business hours Monday through Friday beginning at 9 am EST.

Becki

If your insurance company is like mine - if a generic brand is available you must have the generic unless the dr writes DAW (despence as written) but you have to pay a higher cost for the name brand because a generic is available.

Celiac situation - brand name is verified gluten free but generic is not then no generic is available.

Insurance - file an appeal with your insurance company! Also contact your House Representatives and Senators in your state.

I am currently in the process and will let you know the outcome.

Gluten Free Drug Lists

Thank you for these great lists. Very helpful.

Marilyn

I hope to get time to do it soon, but I was trying to track down ingredients for the generic drug I am taking. It took AGES but I finally found the manufacturer's phone number... they're pretty sneaky.

But I think I'm going to call the FDA first and find out what rights consumer's have to finding out if their medications contain allergy related ingredients. Here's the main phone number for the FDA: 1-888-info-fda

recently I came across this list of international drug manufacturers.

Many of our generics today in USA come from abroad. It will be very hard
to find data from them. Click on the blue links...to find their webpages.

http://www.pharmacy.org/company.html

For what it is worth, I had my Caremark send me LEK brand blood pressure
tablets for my first RX. LEK is in Kosovo. Hardly available for us to call.

I did have good experience with Perrigo..in Michigan. They make most of the
generic OTC products sold in grocery stores and drug stores. They had
extensive gluten information when I called them a while back.

Good luck!

Quote:

Originally Posted by klasyjo (Post 22598)

Insurance - file an appeal with your insurance company! Also contact your House Representatives and Senators in your state. I am currently in the process and will let you know the outcome.

No luck with the insurance company - didn't expect it either but tried. They say that there is no exception for Gluten or any other allergy that may be present in a drug. That's wrong in my opinion for many reasons.

I did get a call back from one HR in my state. The office wanted to know tons of information so I gave him what I could offer and some additional contacts. Here is a copy of an email I received from another - no help but I did get a response:

Quote:

Dear Ms. Brooks ,
Thank you for writing about Celiac disease and the Food and Drug Administration (FDA). The email you sent to State Rep. Glenn Steil, Jr. was forwarded to me since I represent you on the federal level.

Your email correctly notes that the Food Allergen Labeling and Consumer Protection Act, which was enacted in 2004, does not pertain to prescription drugs. At this time, I am not aware of any legislation pending in Congress to require labeling of gluten in prescription drugs. I will be sure to keep your email in mind if Congress considers this.

Also, in 2005, the FDA took steps to provide better prescription drug information to consumers. The FDA began requiring drug manufacturers to submit prescription drug label information to FDA in a new electronic format, which will allow healthcare providers and the general public to more easily access the product information found in the FDA-approved package inserts for all approved medicines in the U.S. Information is available on "DailyMed" -- a new interagency online health information clearinghouse that provides the most up-to-date medication information, which is available at http://dailymed.nlm.nih.gov . However, as you are aware, some prescription drug manufacturers do not test their products for gluten, and information about this allergen would not be available on DailyMed.

Thanks again for contacting me.

I didn't have that website before now so I did learn something new.

Qualitest Pharmaceuticals Inc. 1-800-444-4011 stated to me on Monday that all their products are made with potato starch and in a GF facility. One product they have is methylprednisolone (medrol dose pack). I had to call because I was given the rx and pharmacies are terrible about verifying medications.