Spouse reaction to your first diagnosed MG
 

I guess the title tells it all. Does anyone mind to share?
For me, when i told my wife that i have MG. She is like " you should buy a life insurance" and she is serious.

Life Insurance
 

ttmmkk001
I did get a little chuckle out of your post. I realize it probably wasn't funny to you. Mine may have done the same, and just not said it. (I do have ins)
You need to know that you can live a fairly normal life with MG. however, you must take care of yourself, and take all meds as you need.
By fairly normal, I mean you may not always feel as good as you once did, but at times you will too. I worked 10 hours a day for 4 years after I started having the symptoms. I have retired now, but I am also 78 years old. It was time anyway.
Remember your frame of mind may play a large part. Get a good neuro, and any other necessary docs, and live your life, It may surprise you.
I know you have been very worried from previous post, but it could be a lot worse.
Best to you
FREDH:)

I've had MG my entire life and I'm not dead yet! ;)

People who don't have MG can't understand it and may overreact to it. Sure, it's good to be prepared, but spending money on life insurance—is it ever truly worth it?

She may have reacted out of fear. Who knows. Give her time to get used to the idea of it and to get to know MG. You need time for that, too!

People with MG range from wheelchair bound to working 40 hours per week! It all depends upon the severity of it, response to treatments, and so many other factors such as age.

Would anyone healthy want to even think about what it is to have a disease? Don't take anyone else's comments personally. They have no frame of reference and reactions are often of the knee-jerk nature!

Take care,

Annie

Hi,
I'm new to the forums. I joined to find information for my husband. I've had Fibromyalgia for 20 years, IBS, cancer and more so I'm no stranger to chronic illness. My husband is 59 and was just diagnosed. Since your post asks more about my reaction, I'll just concentrate on that.
I broke down. I cried and I became so unmotivated I literally couldn't do anything for 2-3 weeks. I was in a state of shock. I ended up talking with a psychologist. She said if there are days where you only want to watch Newflix and play on the computer, then that's what you do. You have to fill your life with little joys when the major 'crap storms' hit.
I think my problem was seeing my husband suffer. It tore me apart. The double vision is his worst symptom. After research, we've determined he's probably had this most of his life. I do have a fear he will die, but like he says all the time 'no one is getting off this planet alive anyway.'
I have to do all the driving. His energy level is back and he's volunteering. Anything to help him feel useful I'm all for it.
We made a pact....we are in this til the end, no matter what. We will enjoy what we can, continue to help others and just take it a little at a time.
Good luck to you!!:hug:

My wife have been going through the same thing for 5 years. We support each other and attend ALL doctor appts. She has brain surgery next month so its getting tough but we laugh to keep from crying.
Mike

Well, it was easier for me. We had a very difficult times when my symptoms hit. We just had our first child. Her typically hard working husband stated sleeping 12 hours a days and providing very little baby help. I knew something was wring. I sought answers but didn't share alot with her, which made things worse. It took almost 15month before MG got on my radar. Before that, I was thinking strokes, brain tumors, Narcolepsy.. So once we figured out MG we were just glad it is something I can live with.
My concern now is maybe she doesn't understand how bad it may get. She doesn't do research herself. I'm not sure how to tell here all the different possibilities of this disease.

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