Calling All Parents (or advice givers)!
 

Hello.

I decided to invite Momma along with me to my Neurologist on Friday (13th). She will be in town for a week, and this will be the first time she will be able to give feedback regarding my childhood behavior to my Neurologist. What I am trying to do, for my mother - is to gather information regarding Childhood Symptoms of Epilepsy/Seizure Disorders to keep her from babbling, because I know my Neurologist has a 10 minute time limit before everything you say is worthless to her.

Sad but true!

Do any of you know of any websites or do you have any personal experiences you can help me out with? Anything from behavior to learning difficulties for her to look at and say Yes or No to will do. She will be flying out here the 12th, so I told her this weekend I'd compile some information for her an email it.

I hate to sound like a putz, but I always tell her I'll email her information on my seizures but I don't want to scare her. :) I've been hesitant to do this with her, because I hate that she feels guilty for not noticing some things, but it isn't her fault and I hope she knows that (and yes, I remind her daily).

Any help would be appreciated.

Thanks so much for reading.

Love,

Ellie

well, it depends on what kind of sz and where the focus of the sz are. You can't really give a blanket statement of childhood E symptoms.

There are many times learning issues associated with type of E and also as a side effect of medications used to treat them.

www.efa.org is a good place to start for info on various types of sz. Does she remember you having any sz activity when you were a kid? Maybe having her read at the Answerplace at EFA is a good place for her start understanding about different kinds of E, and maybe then she will relate it to your childhood.

They never used medications because we kind of overlooked the possibility of seizures. I had 1-2 GM's per year from my young age up to now (29). Now I average around 3-15 complex partials per week, the frequency will rise with my monthly cycles now, too.

As far as Focal/Absent seizures - I don't notice them, and I believe those are the more 'what to look for' types I'd need her to read up on. I had the SIT done as a teen, but that was also overlooked.

:(

She recalls more 'blank' type of behavior out of me. I was shy (very quiet), VERY emotional (a cry baby, if you will), and 'sickly'. They said my learning delays were from a combination of being premature, and then being oxygen deprived on several occasions. I have 'My Story' posted which provides better details on my situation.

On another note, I am sooooo excited for her to see my house!

(It's way cooler than hers, hah!)

Hope it going well for you with mom there

hugs