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-   -   How many here on Gilenya? (https://www.neurotalk.org/multiple-sclerosis/155349-gilenya.html)

daisy.girl 08-14-2011 07:40 PM

How many here on Gilenya?
 
I am just wondering how many people here are on gilenya?

Can you tell me any side effects that you have had?

I just started gilenya on Tuesday this week, and after 3 doses, I was having burning eyes, hip/leg pain, nausea, and this horrible feeling of shaking/tremors, like I was on speed.

My neuro told me not to take it Friday or Saturday and restart it on Sunday.

Well, I felt better on Friday and Saturday, and just took my dose 2 hours ago, and I again am having the leg pain, burning eyes, and nausea.

I want to give this long enough to work, but at the same time, I don't want to continue if I am having an allergic reaction....oh how to know with such a new med!!
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