cerebellar ataxia
 

Hi..My mother is 46 yrs old, she is suffering from cerebral ataxia..having problems in coordinating voluntary movements..what is gluttens ataxia???can a glutten free diet help my mom??
Please help?. she is having problems coordinating her body movements...like walking,climbing steps,eating food. her speech has also slurred.
I wanted to know whether stem cell treatment will help or is there any other alternative treatment for this problem. please help.

yes, the gluten peptide
 

is capable of causing some forms of celebellar ataxia.

You can read more here:
http://jccglutenfree.googlepages.com...ationsofgluten

You can go gluten free (does not need drugs) to test the hypothesis.
You can have testing BEFORE you go gluten free as well.

I think anyone caught in this terrible bind with ataxia, should investigate this
possibility.

Another condition that often goes hand in hand with gluten sensitivity is Hashimoto's Encephalopathy. It can also cause ataxia and speech disturbances. It's diagnosed by checking thyroid antibodies (to thyroglobulin and thyroperoxidase), even if hormone levels are okay. It's treated with steroids. Most doctors have not heard of it, though.

Best Wishes.

cerebral ataxia
 

M[QUOTE=ritu184;214527]Hi, my husband has been diagnosed with this disease after many doctors. He is using a walker and sometimes a power chair. Is there any one out there that is going through the same thing, I really need to talk to someone.

cerebellar ataxtia
 

I had it when i born. Now im 41 year old. Want to find somebody who has the same thing. Im not in a wheelchiar.still can walk,drive.do thing's i like to do.

Hi Ritu,

I have Celiac disease, and adhere to my "It Sucks to be you diet" by the letter. I can't have any grain whatsoever - so no rice, no wheat, no oats, no corn. But it's not all to bad.

And lord I get Ataxia. Even with a gluten free diet, those of us who have gone a long time being undiagnosed have neurological damage that won't be resolved. BUT, on my recent "fall down" spin around hit the floor visit to the ER last month - they gave me something great. Plain old Meclizine (like the over the counter Dramamine for motion sickness) and thank God!!! Works really well and it's a safe drug that's been around a long time.

The worst thing for us Celiacs is we have a ton of neurological problems that go along with it and few doctors who know a whole lot about it. Hopefully that will change in the next while. For the meantime, go to the store and get some over the counter Dramamine and see if that helps - if it does might give you a good direction to go in.

Also, with Celiacs and "Gluten Encelopathy", it's a good idea to pop a Benydryl to take off some of the allergic reaction and brain swelling that might be causing some of it to. Absolutely - check everything for gluten, they sneak it into absolutely everything. Be careful.

God Bless!
Sue

Hey dknight
 

Dkight I have the same thing and cannot holdout very long to walk anywhere.
I am at the point where I am holding on to everything I walk by cause I am scared I am going to hit the ground with every step I take. I am 39 at this time and still walking without a walker but seems like it would safer to used one then take a chance on falling and hurting myself. I have a girl friend that wants me to go on a cruise with her but it's kinda scary thought because I'm not sure about my condition will be a year from now. Feel free to email me if you like I am on facebook as rodneyln ( Rodney NeeSmith ) Georgia

Hi Rodney, I'm from South Africa and was diagnosed with Cerrebellar Ataxia Type 1 in October last year. This is a family disease and there are quite a few of my generation who have had it or has it. With regards to your question re travel, I have an older brother who has this disease too (+/- 5 years now) and last year for his and his wife's 60th birthday, they flew to Turkey and then went on a cruise. They were gone for 6 weeks. He usually uses a walker, but on the cruise chose to use a wheel chair, and apparently, both the airline and cruise staff were superb! My brothers' comment when they came back: I had so many excuses about being a 'burden' and such things, but I wouldn't have missed this for the world.! So there you go, go out and enjoy yourself whilst you can still walk around without a walker - just be careful as you have been doing!

An MRI from September 2009 showed that I had cerebellar ataxia. I spent four years being tested and misdiagnosed and then found out it was mercury poisoning. I had my amalgams taken out and 6 months go by and nothing is happening (except spending a lot of money on supplements to get rid of the mercury) so I sought out a homeopathic doctor who specialized in heavy metal poisoning. She said my cells were SO toxic that the supplements and the nutrition I was eating were basically being put on top of garbage. She put me on a cleansing system for 30 days and it was miraculous how much better I started to feel. My balance improved, my brain wasn't as foggy, I'd lost some inches in my waist. Over the past six months since doing the cleansing I can tell a huge difference in my balance and I know my cerebellum is growing back. I would be more than happy to talk with you or your mom if you send me your info. I had an expensive and miserable journey so I know how frustrating it can be.

[QUOTE=patinkc;746480]MI am,my name is Sonia I am a 38 year old female.I was told their is no cure but I have cerebellar atrophy/ataxia,they said its very rare.