Type 2 trigeminal neuralgia
 

Hi,a family member has being diagnosed with type 2 trigeminal neuralgia.she is experiencing burning side of her face,constant ache,roof of mouth sore and really bad eye pain.the top of her scalp itching also.its the eye pain that is the worse.just wondering has anyone else had really bad eye pain and what did they take or do to help this?
Any help would be great as it's horrible to see them suffer like this

Paracetamol and ibuprofen are a given. I do not recommend codine as its addictive and deadening to your personality.

Meds can be effective and take the edge and bulk of the pain away but not all of it.

Avoid touching the side of the face at all, not the ears, nose, skin, scalp, anything.

Work out trigers and avoid, like rain or breeze etc

Heat packs and cold packs can give some relief but it hurts more after.

The miracle cure is capcisum, it kills off nerve endings. Rub it into effective areas, snort it from a nasal spray etc. It will hurt like nothing on earth for 30 min and your face will go bright red, and then it goes away and the pain is a bit better after.

Type 2 sounds inhuman and genuinely unbearable.

My wife, in her 7th day of this T N attack, has Type 1, I guess (didn't know there were different types) which is debilitating jaw pain - right side.

Have you found any relief..from anything?

Many thanks.

Speaking from the perspective of the sufferer, it is truly unbearable. I have had ATN ("Type 2" / Constant TN / Not from a blood vessel pressing on V3) for nearly 29 years. It has taken everything within my power to not take my life every other day.
At one time I could bury myself in work 20 plus hours a day. The outside (those not in my inner circle) did not need know about the suffering or see my tears. I just had a "migraine" when I spoke to anyone. I feel like I am ripping apart physically and mentally. The right side of my head feels as though is either going to explode, melt off or I am going to pull it off to make it possibly feel better. With every execerbation in pain I have migraines one after the other / cluster headaches. When my old Neuro jokingly said he had a cure that might work, he didn't realize that my lower body would been happy with his "just amputate the head joke."
If that wasn't enough I also have a horrible neck that has been operated on 7 times. The neuropathy in my shoulders, arms and hands is debilitating. Functionally chest up is questionable.
I literally have tried everything in the formulary. I have been to every type of physician. I have been in every type of therapy, both mental and physical. I continue to persue treatment in both avenues to stay alive.
I am currently in pursuit of psychodelic or psychodelic-derived treatments that work differently. I have done high-dose ketamine infusions with some short term success. I have use ketamine troche with some temporary relief and help with depression. My pursuits are deeper and more lasting. Perhaps ketamine coma as a last resort. There are many things in between ... if I can get to them with the help of my excellent care team.
I wish your better half - good day where they can be found. Comfort is hard to find. Sometimes just the ability to let it all out helps the pain.

Dave