New to the boards...
 

Hey everyone..
I am new to these boards today and I have to tell you, What a relief to have found you! My boyfriend of 6 months suffers from PCS and WOW, how dificult times can be with him. He was robbed and beat jat his job ust over three years ago and has suffered with his PCS ever since. He lives on mediations just to make life tollerable. It's a major ordeal popping all those pills 2 or 3 times a day! He suffers from Major headaches, blurred vision, mood swings, stress, anxiety, anger spurts and so much more.... Even after three years he is still trying to get the right mediations to help. It seems like a major game to the dr. to MEss with his drugs.. Sometiems I feel like he is a guinee pig for this guy. Swithing medications almost MONTHLY...=(
SO, I am here for some moral support and advise. It sems that his worse symptom is the anger. HE has major outburst of anger... then realizes afterwrads that he made a mistake and apologizes.. LIke he acn't control it.. and I know sometiems that he can't. I am curious to find out what medications other PCS sufferes are taking... Currently he is on Gabapentin, topamax, zoloft, vicadin and his asthma meds....They also just started a new medication to replace the zoloft ot help with the anger... It seems to be helping, but I can't think of the name of it righ tnow!!! Anyway, I was also wondering if any of you go to counceling or therapy to hlep you manager you symptoms without mediation... Or is he DOOMED to be on drugs for the rest of his life....?? I would love any advice or "sympathy" LOL that i can get!
Thanks,
Andrea

Hi ,
Has he ever considered seeing a expert chiropractor?
I just wonder if since he had a head trauma if some of his sx might be caused by misalignments...
I"ll post some links that will explain it better than I can.

Chiropractic care info- a good one can help with many symptoms:
http://www.upcspine.com/self.htm
http://www.uppercervical.org/subpag...b/about_faq.php
http://www.spineuniverse.com/index.html
http://www.coloradochiropractic.org/.../glossary.html

and a chart -
http://neurotalk.psychcentral.com/post284498-35.html

I hate to lump genders together, but I think the anger and lashing out comes from frustration. Instead of lashing out- I cried a lot.

It sounds like your b/f needs to find ways to channel his frustrations, especially if this is something he might be dealing with for a long time. I knew that I had to get my emotions in check- and part of that was by accepting what I had to live with. Some might think that this is just "giving in", but I believe in dealing with the cards we're dealt, no matter what they are. Fighting something you can't control does nothing but frustrate you.

I felt really sorry for my husband because there were days/weeks that I wanted nothing better than to sit in a dark room, alone with no noise. I was horribly affected by light, touch and noise in the beginning and it was really difficult for my husband to understand. If he touched me without warning, I'd jump through the ceiling practically. TG, I don't do that very much anymore.

Just because I'm a mom- I want to make sure that his angry outbursts are hurting you in any way. That's more than you bargained for, and if he's this far out, it's not going to stop unless he seeks help in channeling his anger.

Hugs,
Lori

Lori,
Thanks for your reply.. I have to say that his anger is NEVER physical. It's always just outbursts of anger.... Usually very quick and over almost before it starts.. However, I have had some concerns iwth him cursing at the kids and me during his anger... Which audviously frustrates me. and I try to calm him down, but it just doesn't work. I talked to him today about going to a councelor or even trying an anger management class... WOW, you would have thought I asked him to kill his best friend. IT was like the most repulsive and obscene thing he had ever heard.... As much as I love him, I'm having a hard time wanting to commit andsign myself up for a life of anger and anxiety with him....I am also havng a hard time because he is very dependant on me. He really just can't focus on anything. He can't even fill out a job app without messing it up... and his thoughts are just so scattered and crazy. Gosh, I love him so much... I want to help him, but it just sems like maybe he doesn't want my help... =(

hi ya
 

I am sorry you are going through this, it really dose depend on the severity of the injury when dose PCS become a TBI it also depends on what sort of job you have and the kind of employer mine turned out to be a right #### if they think its gona cost em, now your guy was assaulted, like me apart from the TBI there are issues there with anger, it is a real shame he hasn't signed up to this board , are there any head injury support groups, in your area I am in the uk and have hook up with headway ,I was talking to one of ladies there and we touched on the issue of man pride :cool:?? try not to poke it , us guys feel bad enough, and for some work is possible and for others it is not it really depends on the part of the brain thats effected, I think you need to see the right doctors topamax lowers CSF production and I cant see that as helping things I am a bit of an expert on CSF as I have a leak, finding out all you can helps (its keeping me sane ??)

hope things improve for you both

kind regards Vini