A.D. Still looking for an answer
 

My AD was caused from a motorcycle accident/no helmet/I was a rider, where I was thrown off and into a 4x4 post and curve sign. I have no memory of the accident or the pain at the time and didnt wake up until I was in Surgical ICU. Surgery was not done for four days on my eye socket which was splintered and I also had a crushed nerve in my left cheek. Everyone thought the pain would go away but it didnt. After another surgery to remove the pins, then MVD surgery - which helped nothing and has left me with pain in the back of my head too, surgery to pull my eye back forward and the doctor injecting the nerve in my face to try and make it just be numb. This seemed to work for about a month and then the pain came back even worse. Ive also been to Portland OR - OHSU for a stimulator placed in my cheek, which was worse and aggravated the pain, then a round of narcotics which only made me feel weird but still with the pain. Up until a month ago I took Ritalin (to get my mind off the pain) Cymbalta, Depakote, Tramedol, Lyrica, in the morning and all this except the Ritalin at night PLUS, Arthrotec, Lunesta and Ibuprofen at bedtime just to get to sleep. Somedays it helped and others it didnt. My stress level was very high as I continued to work although from home in a technical writing capacity. I did this until I was so stressed out that my eyes were twitching all day long and I was so depressed I could do no more than just work in the day and then want to sleep. My doctor NOW has taken me off depakote and put me on carbamazepine instead and cut down the cymbalta by one pill. It is causing my AD pain to be worse all the time, even though I take the Ritalin..it masks the help that it had been affording at least for a few hours a day.
I am looking for any other places to go for clinical trials or other treatment methods that may help. No one really understands the constant burning, stinging and numbing pain that an AD person is under since we all look ok. Except I have a scar and a cheek that stays puffy from it all.
I am on short term disability right now too, trying to stay out of stress while changes are made.
Any suggestions will be appreciated.

Good morning Doxie and welcome to Neuro Talk. I am sorry about what brings you here, you have been through a lot. here is a link to the main index of forums, if you scroll to the bottom of the page, you may find a forum or two there to post questions for insight and or answers and maybe some info to clinical trails and such. Do not hesitate to post questions here at NT, the folks here are kind and helpful, again welcome to NT

oops forgot the link

http://neurotalk.psychcentral.com/

hello doxie and welcome to neurotalk ... sorry to hear about all that your going through ... nt is noted for having alot of supportive and helpful people ... check out these links and also any of the other forums and post where you feel comfortable ... again ... welcome
http://neurotalk.psychcentral.com/forum10.html chronic pain forum
http://neurotalk.psychcentral.com/forum92.html tramatic brain injury and post concussion forum
http://neurotalk.psychcentral.com/index.php index to all the different forums

Hi doxiemom and welcome to NeuroTalk!

Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help.

Again welcome, looking forward to seeing you around.

Darlene :hug:

Welcome to neuro talk. Please follow the link below to our trigeminal nuralgia forum. I post alot in that forum.
I have A.D. and the t.n. forum has tons of info ..even some cutting edge mirror thrapy for A.D. I myself have a neuro stimulator implanted for my a.d. pain. it is not approved by the gov yet but it is slowly being offered more and more as the years go by.
Please visit the T.N. forum here is the link....

http://neurotalk.psychcentral.com/forum26.html

If you need anything, want to talk have questions or just want to vent feel free to message me by clikcing on my name and sending me a message. There is alot of great folks here and we are ready to help, lend support and heck we are a big caring nice bunch here, Glad you have found your way. I hope to get to know you better and also hope I can help you some too.
PEACE
BMW

Hello doxiemom and welcome to NeuroTalk. You sure have been through alot, so I'm really glad you found us. Wish I could give you a prescription for ''no stress'', but I'm still waiting for one myself..

I like your username. Are you a Mom to doxie's? I have 2 mini black and tans *13 and 10* Please make yourself at home here and join in anywhere. Glad to have you w/us.
http://dl2.glitter-graphics.net/pub/...fikvms1rkc.gif

Hello and Welcome to Neurotalk!! You will meet many great and supportive people here!!

http://dl8.glitter-graphics.net/pub/...so4ceb6k9e.gif

I'm sorry to hear about everything that you have and are currently going through :hug:. I really hope you can get some answers and help soon. I have RSD (Reflex Sympathetic Dystrophy) so can relate to the burning pain you are having to deal with.

If you need anything, please don't hesitate to ask, I am more than happy to help you in anyway I possibly can and i'm sure others will be too.

Take care and I look forward to seeing you around the forum soon!

Alison

Hi Doxiemom and welcome to NeuroTalk.

If you need anything, just let us know. I hope you get some answers soon.

http://i67.photobucket.com/albums/h3...umnWelcome.jpg