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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   craniosacral therapy: quackery? not? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/88985-craniosacral-therapy-quackery.html)

mimichicago 06-05-2009 03:36 PM

craniosacral therapy: quackery? not?
 
i want to try craniosacral therapy, as a therapist at the place where i get PT does it, and because i read a miracle cure story about it once (those miracle cure stories are like crack!). my main doctor told me that it's baloney, but i'm willing to lay down a few bucks to find out for myself.
does anyone have any opinions, experiences, advice?
be honest--i'm just trying to exhaust my shrinking pool of non-ketamine options (as if my health care would cover ketamine).

Dubious 06-05-2009 08:08 PM

Quote:

Originally Posted by mimichicago (Post 519682)
i want to try craniosacral therapy, as a therapist at the place where i get PT does it, and because i read a miracle cure story about it once (those miracle cure stories are like crack!). my main doctor told me that it's baloney, but i'm willing to lay down a few bucks to find out for myself.
does anyone have any opinions, experiences, advice?
be honest--i'm just trying to exhaust my shrinking pool of non-ketamine options (as if my health care would cover ketamine).

Like anything else, it works on some people, for somethings, sometimes. Your MD knows nothing about it, by training. That would be like discussing pelvic exams with your dentist...Ask an osteopath or chiropractor that does SOT.

watsonsh 06-05-2009 09:42 PM

My PT does cranio work and while I do not have RSD it is a therapy that works for me.

You can go to www.iahp.com to search for an upledger trained cranio person in your area.

Hope it works for you

finz 06-06-2009 02:55 AM

It helps me, but occipital neuralgia is part of my problem (RSD, fibro, CF, ON, TOS)

Gymjunkie 06-08-2009 09:19 AM

MimiChicago

My physiotherapist tried craniosacral therapy for my CRPS but it was a complete waste of time. Absolutely nothing happened either good or bad. I went into it with an open mind because I was already at the stage where nothing else was making any difference. We had by then run out of things to try so I had absolutely nothing to lose.

I didn't have to pay for the treatment - it was free (I am in the UK) and I had several sessions becuase she was interested in trying it on me. I have to be honest, if I'd been given the option but there had been a charge, I wouldn't have bothered with it. However, if you are offered something harmless for free why would you not give it a try?

Since you are going to have to pay for the treatment I suppose you need to think hard about whether it is worth it. I guess only you can decide what to do but good luck.

mimichicago 06-08-2009 12:48 PM

Thanks everyone for responding! I'm able to try it out for about 25 bucks at my PT place, so why not. That's about how much I paid for acupuncture (which made my foot feel weird instead of better, so I stopped).

SandyRI 06-08-2009 09:07 PM

Quote:

Originally Posted by mimichicago (Post 519682)
be honest--i'm just trying to exhaust my shrinking pool of non-ketamine options (as if my health care would cover ketamine).

Check your policy - it specifically states in my United Health Care policy that it is NOT covered. (That is my family insurance plan provided by my employer).

But my attorney has informed me that he has WC RSD clients that ARE receiving ketamine in Boston. So it depends on who is providing your coverage.

Sandy

angelrsd 06-09-2009 09:45 AM

i have had cranio therapy when i first got rsd and it did help.. i would at least try it.. it cant make it any worse right ?

carrie


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