Curetogether Survey: PN Treatments, popular vs effective
 

In 2011 Curetogether.com did a survey of 800 neuropathy sufferers and ranked the treatments that were popular vs. effective. (see below)

I always wondered if anyone posted this survey on this forum. I did a search and couldn't find it. Forgive me if this has already been discussed.

After doing lots of reading on this forum, I think it would be interesting to have a sticky which everyone old and new could participate in when they come to this board, saying what type of pn they have, what they have tried, what has worked, or any other info people would find it interesting to have our stats regarding.

Perhaps this forum has done this and I haven't found it.

Natalie

http://curetogether.com/blog/2011/08...35-treatments/

For up-to-date results (which have changed and better includes more treatments since main chart) be sure to click on this link below the chart:
"For the live-updated, interactive version of this infographic, click here."
(although it's annoying that you have to roll your cursor over each dot to see the therapy)

Once you click on the "live-updated" version, it is very interesting to roam around a click on all the various tabs and links of this survey and see the various data points. For example, the links of "symptoms, Treatments Side Effects, Causes under the "Stats" tab, etc.

You can also add your data to the survey.

Hi,
This is really interesting. I have never heard of low dose naltrexone used as a treatment for neuropathy.
I am also wondering if this drugs proved helpful why no physician has ever mentioned it. I wonder if they are aware.

I think you may be on to something!
Hopeful

It's difficult for me to imagine/characterize a treatment for neuropathy as "popular" unless it were... https://www.greenpassion.org/public/...ault/smoke.gif

I think that pretty much describes this forum in toto.

Doc

Dear Dr Smith
 

Hello Dr Smith
I hope this message reaches you as I am not sure how you start a new thread. I have neuropathy and sever allodynia. Which they now think could be CRPS..I do know my allodynia has got a lot worse with stress....my question is I took LDN 4.5 mg took it for 2 nights and it made my pain so much worse I didn't take it again..can you put me in touch with people that have had the same problem ..I want to know should I start again but on a much lower dose..my allodynia is all over my body including my scalp and face and burns all day. Thankyou for any help that you can give me Heather

Heather, what you describe is apparently not that rare, and may be par for the course.

low dose naltrexone pain got worse

You might also search the archives for threads/posts about LDN (I'd search for naltrexone).

It's also not uncommon to go through a "honeymoon period" with many new medications (e.g. gabapentin, pregabalin) as our bodies become accustomed to their presence, and/or build up to therapeutic levels.

When given any new prescription, I think it's prudent to do our own research to find out about potential adverse effects, side effects, etc., and learn which ones to ride out and/or which ones to discontinue use and call our doctors.

Doc

naltrexone can be extremely dangerous if taken shortly after certain opioid use. just be aware of that. I know as my old senile doctor gave me oxycodone and suboxone together for pain and threw me into something horrifying called precipitated withdrawal. I wanted to kill him

Sorry to see your mood is blah .... although understandable if you are health challenged. Hope your summer brings you some nice surprises.