NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Gluten Sensitivity / Celiac Disease (https://www.neurotalk.org/gluten-sensitivity-celiac-disease/)
-   -   The best paper I have ever read on celiacs! (https://www.neurotalk.org/gluten-sensitivity-celiac-disease/11587-paper-read-celiacs.html)

darlindeb25 01-20-2007 06:11 AM

The best paper I have ever read on celiacs!
 
This is the best paper I have ever read with definitions of celiac disease. He tells why some heal so well, why some do not. The different degrees of celiacs, why some are so easy to diagnose and why some are not. I printed the paper--be aware, it is 14 pages long and the tiniest print. I am sending the paper to my parents.

My dad has had stomach problems for years, as long as I can remember. He retired and has been sick since then, even before. He had terrible diarrhea, went from 260# down to 135#. The doctors did a exploratory surgery to see what was going on and his entire small intestine is calcified, completely, along with all of the blood vessels that attach to the large intestine. They told him that a person can live without their small intestine, yet they were afraid to remove it because of the involvement of the blood vessels. They had never seen anything like it before. At that time he was not gf yet, he had tried it and was still sick, so gave up. That was 4 yrs ago. Finally he did go gf for good in November of 2005. He does feel better, yet still has bouts of diarrhea, not as bad as before. He has gained some of the weight back, maybe up to 170#. My dad is not the big guy I remember, he is very pale, frail looking. It's so sad. As I was reading this paper, it kind of explains so much.

Please read it and let me know what you think. Dr. Murray is originally from Ireland, the paper was written in 1996, and is so very informative.

http://www.bayareaceliacs.org/widening-spectrum.htm

Deb

loisba 01-20-2007 08:06 PM

Neat article, thanks a bunch!

jccgf 01-21-2007 12:12 PM

Thanks Deb :) ! I agree!

heyjude5050 01-21-2007 02:10 PM

Deb,
Very good, informative article. I see so many symptoms that could relate to my undiagnosed body, and the fact that I am only 4'10 and 1/2 really peaked my attention. Actually, many things peaked my interest.
Thanks,
Judy

jccgf 01-21-2007 03:10 PM

Hi Judy,

Here are a few more excellent articles. I really like the AAFP articles, but the NIDDK has a nice symptom list (keeping in mind that celiac disease can be totally asymptomatic!).

Celiac Disease is grossly underdiagnosed, and gluten sensitivity outside of celiac disease is just beginning to be recognized. If you are reading things that have you wondering... keep reading! Also, check out The Gluten File, scan the right bar to see what other pieces might fit.

Cara


Detecting Celiac Disease in Your Patients by Harold T. Pruessner, MD (AAFP)

Gluten-Sensitive Enteropathy (Celiac Disease): More Common Than You Think by David A. Nelson, JR, MD, MS (AAFP)

NIDDK Celiac Disease



KimS 01-21-2007 10:15 PM

That really is an awesome article!!

Thanks for posting it. :)


All times are GMT -5. The time now is 07:54 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.