Question for the group
 

Hi Everyone!
I am studying and researching MG. I have had some double vision, blurred vision in both eyes, eye drooping on left side, and falling episodes....wrist pain with typing and writing...My Family doc referred me to a neurologist..he had me walk in a straight line on my tippy toes, ....and I couldn't do it! I was scared that it was MS..but the MRI was normal, EMG was normal (no carpel tunnel either), and no antibodies were detected in the lab work...also, cat scan showed the the thymas was not enlarged....

The doc put me on pyridostigmine (60 MG three times a day)...My hands are swelling and my ankles are swelling....and my hands get so tired when I type. I have to take frequent breaks from typing.

In your experience are these normal symptons of MG? Can you still have MG if all tests are negative? The Doc says that all signs point to MG...I am searching for information...

Any advice or help would be greatly appreciated!!

Cricket

Hi Cricket,

welcome to the forum!!

I started out with double vision and droopy eyelids, amongst other things as well.
When I met my neuro for the first time, he to made me tiptoe and walk on my heels, both of which I could not do at all.(I can now tho, unless of course I'm having a really bad time)

I don't have any swelling of my hands or ankles.
I do however if I'm having a bad day find it impossible to type for more than a few minutes, before having to rest, or resort to using only two fingers.

hope this helps some, take care and keep asking as many questions as you want, its a great place to find things out, get help, and find lots of people happy to give you help and support.
take care
redtail

Thanks!! I have found alot of useful information here!

Thanks!! I am finding alot of helpful information from this site.

Hi Cricket!!!!
 

It does sound like MG - and that you need more than just mestinon to help you - even on Mestinon I had some ugly experiences, but since I started on the roids' I have been pretty stable!!!!

Hang in there! Tell your neuro that you still feel awful and ask about other meds..........

Erin:D

Cricket...

Do you find that the Mestinon does anything at all for you to help with your symptoms?

Lydia

Does Mg run in families?
 

Hello all! My mom also has a lot of MG symptoms (blurry vision/double vision) , weakness, general fatigue - in fact, the other night she fell over in a chair and was unable to get up - Ihad to lift her.......

For years now she has had symptoms, but refuses to see our family physician......she hates blood work,etc.

She has never had problems swallowing or breathing, but neither did I until I became really ill after my trip to Belize, so my question to all of you is: Does this run in families?

She also has a lot of problems with her memory - and I KNOW MG has affected mine - hate it!

Do any of you have any advice?

Erin:D

There have been some instances of family members sharing MG. However, I don't think it's because it's a hereditary disease, but rather because family members have been exposed to the same triggering phenomenom, whatever that might be.

It's my opinion that MG does NOT cause memory problems. I believe that's the general consensus of the medical community as well. I think it's simply the stress of living with a chronic illness and the effects of the meds we take to combat it that can cause the memory and cognitive issues. As for myself, my memory is as good as ever...much to my husband's disappointment. LOL

Missy

THat does make sense
 

I guess taking so many darn pills every day really can mess with anyone's memory! I have just been feeling like I've been in a fog recently - augh!!!

Had mylast IV IG and felt AWESOME but waaaaaaay over did it and am paying the price! C'est la vie!!!!

How are YOU feeling? Did you have a great xmas?

Erin:D

I am doing well right now. I had 6 weeks almost symptom free and then a one week "mild-moderate" flare up and now back to mostly good. I just infused 50 grams of IVIG this afternoon in hopes of making it through the next few weeks on a high note.

Christmas was peaceful. Visits with several friends and my mom. Everyone liked their presents and there were no "conflicts" of any kind.

Hope everyone else is heading toward the new year in a good state--physically and mentally!:D

Missy