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-   -   hi everyone-glad I found you (https://www.neurotalk.org/new-member-introductions/167617-hi-glad-found.html)

lined_in_silver 04-04-2012 08:10 PM

hi everyone-glad I found you
 
Hi there, I stumbled upon this siteafter doing a search for undiagnosed chronic pain and the atory I read was so similiar to mine I am finally feeling a little hope after 1 1/2 years of misery . I have been to almost 10 doctors who cannot disagnose me and I must say Im feeling alone and helpless.
to sum it all up:started with bladder issues (urgency,frequency,burning with no infection)
pelvic pain and pressure
burning sensation around tailbone,up and.down.back, down thighs
numbness and tingling in hands feet and face (not anymore)
laporascopic surgery with endometriosis and cyst removed
Most recently abdominal bloating and pain

Bloodwork is all ok, other than low iron and low creatinine output
I have polycystic ovarian syndrome
28 years old, no children
Anxiety and depression my whole life

tried amytyptaline, worked for a while but only for urinary frequency and helped me sleep
currently taking painkillers as they dull the burning and pain
Tylonal, advil, etc do.nothing. Take clonazepam for anxiety for 7 years now.
hypoglycemic although all blood tests show normal glucose levels. I have always thought I had diabetes as I shake and nearly pass out when I dont eat for a few hours, and crave sweets all of the time.

Doctors have given up on me and are even reluctant to give me pain meds.
My quality of life is very low. I can barely make it through work because the burning under my skin is so severe. my social life failed a long time ago as well as my relationship.

Im sure there is more useful info but I am hoping.gor some insight from.people.who have experienced similiar pain . ANY guidance would keep me going.

thanks for reading. sorry about punctuation and spelling-using a touchscreen phone . : )

my heart goes out to those who also suffer and are not getting the help they need .

Darlene 04-05-2012 01:32 AM

Nice to meet you!!
 



:Wave-Hello:Hello and welcome to NeuroTalk. Happy to see you have come to be with us. There are great number and caring fellow members here, you will see we are supportive and relaxing place. Just let us know if we can be of any help. Our shoulders are here for support in many ways. If you check into the following forum there will be a good number of members to assist you:

Spinal Disorders & Back Pain:
http://neurotalk.psychcentral.com/forum22.html

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:

ginnie 04-05-2012 09:26 AM

Dear Feather bullet
 
Glad to meet you. Welcome to Neruo Talk. You will find alot of information on this site. Please feel free to join in on any dicussions. There are many different forums to address you needs, depression, and pain among them. There is a search bar up at the top of the page, you just type in what ever problem that you have, and that will bring you to the site that has other people with those issues. I know all about depression too, as I have had in much of my life. I have stayed with Neuro Talk for two years now because of the friends I have made here. You will find alot of compassionate folks. I hope you find a physician that can help you to sort through your medical issues. Depression can get better with council and the right medications. I was on several different medications, before the right one really did help. That was two years ago, and most of my symptoms have melted away. Again welcome to NT, ginnie

lined_in_silver 04-05-2012 09:11 PM

thanks so much guys, it would be really nice to have some people in my life that understand the pain . I will do some searching around- I see that there are many forums. : )


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