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-   -   spinal myoclonus...questions? (https://www.neurotalk.org/movement-disorders/89026-spinal-myoclonus-questions.html)

k4gypsyrose 06-05-2009 06:57 PM

spinal myoclonus...questions?
 
I was just diagnosed with spinal myoclonus today. What can I expect?

Is it progressive? Can they turn into generalized seizures? HELP!!:confused:

janemarie 04-29-2010 02:11 PM

spinal myoclonus
 
Quote:

Originally Posted by k4gypsyrose (Post 519776)
I was just diagnosed with spinal myoclonus today. What can I expect?

Is it progressive? Can they turn into generalized seizures? HELP!!:confused:

:)Hi, I also have recently been diagnosed with the same disorder. They put me on carba levadopa which replaces the dopamine in the brain which was depleted by my RSD. This and the deteriorated spine is what cause the episoeds. I have had some actual seizures but mostly myoclonic episodes. It can get better. Know that you are not alone, friend. I am under the same starts. This also comforts me. Take care,
Janemariek

kingdbn 05-03-2011 11:38 AM

Quote:

Originally Posted by janemarie (Post 649677)
:)Hi, I also have recently been diagnosed with the same disorder. They put me on carba levadopa which replaces the dopamine in the brain which was depleted by my RSD. This and the deteriorated spine is what cause the episoeds. I have had some actual seizures but mostly myoclonic episodes. It can get better. Know that you are not alone, friend. I am under the same starts. This also comforts me. Take care,
Janemariek

Hi
I have had SM for many years, had all the MRI scans,x- rays, blood tests, different meds wich always make me feel ill. When the medication weakens my spasms are unbearable, sometimes I go for 3 days without sleep. I exersice at gym regulary, swim lots , eat well but to no avail. Doctors shove meds down your throat, but there seems to be no cure. Any ideas that will help.

tonijo 07-30-2011 01:09 PM

muscles in back
 
I dont know if I have spinal myoclonus but mine is multifocal head to heal even soft pallet and asofical tremores found out from upper gi at rest trenors and well alot but I am most worried about back dose mri come back good mine dose the only test I think I havent had it lp so very painfullI take alot of meds siniment ,nerptin soma clozapam norco,ultram ect Tonijo


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