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-   -   summit4stemcell update, 8 pd'ers raising money to implant their own cells (https://www.neurotalk.org/parkinson-s-disease/208495-summit4stemcell-update-8-pders-raising-money-implant-own-cells.html)

soccertese 08-24-2014 11:34 AM

summit4stemcell update, 8 pd'ers raising money to implant their own cells
 
http://www.summit4stemcell.org/

GerryW 08-25-2014 09:41 AM

Donate
 
I am going to donate but I wonder if MJFF will provide some money and if not, why not?

badboy99 08-25-2014 10:20 AM

Quote:

Originally Posted by GerryW (Post 1091560)
I am going to donate but I wonder if MJFF will provide some money and if not, why not?

I'm with you Gerry!

lurkingforacure 08-26-2014 07:46 AM

same
 
Quote:

Originally Posted by badboy99 (Post 1091564)
I'm with you Gerry!

There are many PWP and their families who are becoming increasingly frustrated with what MJFF funds. I think most people have an appreciation for how complex PD is (or appears to be, one day the paradigm will seem so simple, I hope) but. still.

I'd love to see some of the mainstream PD advocacy groups pitch in on this and support it- we should only support those research groups that support the projects we do (speaking on an individual level here, not trying to crowdfund anyone into anything). But as everyone knows, once PD is cured, even with something like this which is merely a "turn back the clock" treatment, those in the field have a new career choice facing them. People being sick is lucrative to the mainstream advocacy groups just as it is to big pharma, for every illness, not just PD.

Sorry to be cynical so early in the morning, but treating illnesses is big business for a lot of people. I am so grateful these brave souls are putting this project out there and hope and pray it will prove to be something that can help us all. If it does, we need to be thinking about how those who get helped by it can raise money to pay for the treatment for those parkies who cannot afford it:)


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