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-   -   Finally got an arrival date for Tecfidera (https://www.neurotalk.org/multiple-sclerosis/190253-finally-arrival-date-tecfidera.html)

Sparky10 06-19-2013 10:05 AM

Finally got an arrival date for Tecfidera
 
It's been 2 and a half months since this process began. What a hassle! You really have to stay on these people. I should be getting my delivery Friday, 6/21.

Delay after delay...they don't have my signature, yes they do...talked to the right people but didn't ask the right questions, goodness knows they aren't going to prompt...got a pharmacy, $2300 copay...back to right people with correct questions to ask...got another pharmacy, med is FREE til end of this year.

Don't let that "$10 copay doesn't apply to those on Medicare" scare you. Talk to MSActivsource and ask specifically for the financial assistance department. That was one of my biggest delays; didn't know I had to ask for that department.

SallyC 06-19-2013 10:42 AM

Good luck Sparky..:)

ANNagain 06-19-2013 11:02 AM

Yeah!

Happy for you, Sparky!

ANN :)

GladysD 06-19-2013 02:45 PM

Good Luck, Hope all goes well for you!! :hug:

jprinz99 06-20-2013 11:14 AM

Sparky- I am doing the Snoopy happy dance for you and also thanking you for the advice re: Medicare ;)

persistence pays off once in a while, eh? Good for you for figuring out the unneeded delays!!!

karilann 06-20-2013 12:24 PM

Glad to hear it!
Week 2 for me on Tecfidera......so far so good! No issues so far.
:hug:

My3sons 06-20-2013 04:28 PM

Great news.. hope it works well for you.
Just got blood work done today and signed papers to start the ball rolling for me.

Sparky10 06-21-2013 09:03 AM

Were you able to get help using my experience, Jane? Oh, that's great! That's one reason we are all here.

Today's the day. *tapping fingers* My Ampyra comes today also. It would be sweet if they both come from the same delivery company. But not my kind of luck.

Kitty 06-21-2013 09:36 AM

My Neuro really wants me to try this med. I need to do some research on it but it sounds like it might be a winner. Judging by how long it took some of you to get it I'd better start now!! :)

I hope everyone has great results with this. It's about time they presented something that will work.

Kitty 06-21-2013 09:41 AM

In my search for more info I happened across this blog of Wheelchair Kamikaze! It talks about BG-12 and PML and other things.

http://www.wheelchairkamikaze.com/20...2-and-pml.html


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