Newly diagnosed with CRPS
 

Hi my name is Angelina and I was diagnosed with type 2 CRPS in August. It started in my left ankle after surgery and is now spreading up my leg to my hip/lower back. I am pretty much scared and feel alone. I am in constant horrible pain all the time with flare ups that go off the charts. I have a hard time walking. I am a single mom and I do my best taking care of my 6 year old. Since I am new to this I don't know much about it or what to do so any advice would be great!:)

Hi Angelina,

I'm glad you found this community at NT. Dealing with any kind of chronic pain can be isolating. The debilitating pain of RSD is hard to explain to friends and family. Having friends here, who I KNOW understand exactly what I'm going through has helped keep me going more times than I can count.

Have you also posted on the RSD board here ? For whatever reason, that board seems to get more traffic. There are a few of us who post on both.

What kinds of doctors are you seeing and what are they doing to treat you ?

I am seeing a PT, my foot doctor who was my surgen who is controling my pain meds, and pain management. I have been getting lumbar injections with anestegia (sp?) but this last one was horrible and after getting it my whole leg has been hurting. So I don't know what to do. It is the weekend so I am just trying to hold on to contact my doctors.
Angelina

Hi Angelina!
 

Just wanted to give you a 'Welcome' Hug :hug:

Finz is absolutely right. The RSD forum is FULL of wonderful people who battle this very frustrating condition. I'm going on 7yrs now.
When I found NT, it was a relief to me that I was not alone in this. I come from a small community. All I got were those 'looks' that speak "what pain? I don't see any pain"

Yep, it can make for a pretty lonely situation without the right kind of support.
So glad you're here and I see you've found your way to the forum!

Caring
Rae
:grouphug: