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-   -   Pain in legs (https://www.neurotalk.org/myasthenia-gravis/209350-pain-legs.html)

Sonomagirl 09-11-2014 09:51 PM

Pain in legs
 
Hi,
I had my second IVIG 4 weeks ago. It took almost 10 days before it kicked in. The last 2 days I have had burst of ache and pain in my legs to take me down on my knees. Today my Neuro increased my Mestonin. From 60 to 90 3 x a day.
Were doing that to see if it works instead of another IVIG treatment at this time.
Has anyone else had theses issues. Sometimes my legs feel sensitive to even touch. When this raging pain hits me I cannot stand.
Please help!
Sonomagirl. debbie

JoeNavy 09-11-2014 10:49 PM

I have similar pain from the knee down some days..I can still stand but it is a aching pan in my joints... I don't know the cause of it thou

jvaagen 10-02-2014 06:23 PM

I have leg ache but mine is from my knees and thighs. Let us know if the mestinon increase relieves some of it. I was on 180mg but was getting sick so I dropped down to 135mg still get the strength back but have the leg aches

AnnieB3 10-04-2014 05:20 PM

Have you been checked for venous insufficiency, dehydration, a clot, infection, or had any other evaluation of your leg pain? If not, you should!

Annie

Sonomagirl 10-12-2014 06:10 PM

Leg pain
 
Quote:

Originally Posted by AnnieB3 (Post 1101207)
Have you been checked for venous insufficiency, dehydration, a clot, infection, or had any other evaluation of your leg pain? If not, you should!

Annie

After further testing as you suggested my Mestonin has been increased. That has really helped. I've also been able to go 8 weeks now without IVIG treatment. I believe that will be in the near future. Thanks again for direction.

cait24 10-12-2014 07:47 PM

I used to get a lot of leg pain. My doctor changed my antidepressant from effexor to cymbalta because cymbalta also helps reduce pain. I think it does help. My leg pain has been reduced


kathie

AnnieB3 10-13-2014 11:17 AM

I'm glad you are better.

Annie


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