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-   -   Found a good news report on LDN (https://www.neurotalk.org/multiple-sclerosis/42744-found-news-report-ldn.html)

momXseven 04-03-2008 11:43 AM

Found a good news report on LDN
 
I thought of you guys would like to see it.
http://www.youtube.com/watch?v=Kz52KK5IhOc

SallyC 04-03-2008 12:05 PM

That was very good. Thanks, Mom, for posting. Good ad for Skips too..LOL. I just got off the phone with Skips...renewing my DD's Script for LDN.:) I pay or her Med for MS...it's the least I can do.

It doesn't work for everyone, but it does for many. I can't speak for other diseases, but I think everyone with MS, should give 4.5mg nightly LDN, at least. a 6 month trial. Unless you are allergic to the drug, it does no harm. It's pretty harmless at the low dose. I've been on it for 5 yrs+.

Don't leave the therapy you are on to take LDN, but if your therapy is not working, then I sure do suggest you give it a try.

:grouphug:

lady_express_44 04-03-2008 01:02 PM

Thanks MX7. Great link!

I'm anxiously awaiting the AAN conference, later in April, to see how the trials worked out. If I recall correctly they trialled SPMS, RRMS and PPMS, as well as those who are on the various CRABs.

Previously they only "recommended" LDN with Copaxone, because they weren't sure if it conflicted with the interferons. These trial results should be revealing anyway, and hope it is good news so that people may be able to combine therapies to get the best bang for their buck.

Also, the results might be convincing to doctors, if only to treat symptoms.

Cherie

MSacorn 04-03-2008 01:05 PM

Thanks Sally
I see my neuro Monday, and will run this by her. If it can't hurt and my help, I've got nothing to lose but sx.

:hug:

Judy2 04-10-2008 12:52 PM

Just another comment regarding LDN. At my last neuro appointment about two weeks ago, he asked if I thought it was working -- well I know it helps somewhat with my "bladder issues". As with the CRABS, we don't really KNOW if it's working, but he was surprised that my MS hasn't advanced more than it has having lived with this "thing" for 18 years and probably 14 before diagnosis. YEA!!!!! Of course my legs don't work much at all (thank goodness for "wheels"), but my arm strength seems to be the same as last visit and everything else is status quo.

I just wish he would have prescribed it sooner before I became SPMS. The 3.0 mg seems to work for me, the 4.5 caused my legs to become too stiff. Have trouble with spasticity anyway.

It's worth a try!!!

sheena 04-10-2008 10:51 PM

Thanks for the post. I ran across the clip last weekend as I am looking hard at LDN as my next drug. There are tons of excellent reports on this drug. I am very strong on this drug.


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