Sweet, sweet confirmation!
Went in for a doppler test today. I'm positive in my left arm (worse side) for both venous and arterial TOS and may be positive in my right for minor arterial but they said it could just be a normal amount of compression. I have neurogenic symptoms in both arms but there's no real good test for that, but it can be assumed that's going on too. The findings completely corroborated what I've been describing! I see Dr. Lowe on Friday and I can expect a surgery date soon after. The tech. said he usually doesn't like to wait very long with arterial TOS.
I'm over the moon. They're sure now that's what's going on and they've actually done some real testing. Finally, a confirmed diagnosis with proof! Guess what, guys? I'm not crazy! This really is real! |
I wish you lots of luck!!
I also have Thoracic outlete syndrome. I was told that i have the neurogenic type. I was injured on the job in 1996 and wasnt diagnosed until I did so much research on the internet and finally found a doctor who agreed with my own diagnoses. First the situation was that I had bilateral carpel tunnel and my right hand had surgery right away from all the jolt sensations I had whenever I extended my right forearm.
I was still having upper extremity weakness in both arms along with pain, feeling of swellingness in both of my underarm areas, tightness like a band or a blood pressure cuff whenever i would use my arms, what feels like a tingeling sensation in my left scapula blade area and pain between both shoulder blades and many muscle spasms over the years. I am still scared and unsure if anything can be done for my situation because my doctor says that my type of thoracic outlet is a true neurogenic one and there is no cure only weight loss and strengthening of the muscles. The symptoms that I experience on a daily basis scare me because I dont know if there is any new pain is it all related to the thoracic or could it be something else. Sometimes I hate talking to my doctor because I am always asking him to see if any new tests have come out to better understand my situation. You mentioned a doppler test and I was wondering what that is exactly, I might have had one but i'm not sure. I have gone for emg testing and nerve conduction vilocity testing over the years but that doesnt show anything. Now I am starting to wonder if I could have one of the other types of thoracic outlete syndromes. But anyway, I hope your surgery goes well and I hope to find an end to my own nightmare soon!! |
Hi Reblette,
You must read on through these forums, as what your doctor says seems to contradict what many of us are aware of. You really need to start with a TOS specialist as many doctors know of the condition but don't know it well. There are threads on this board that indicate different doctors in different areas. Just so you know, many tests for TOS are not conclusive. Many of us had gone through 5-6 doctors before we found the doctors who truly know the syndrome. If you are in the Northeast, Dr. Donahue at Mass General is one of the best discussed on this thread, and I can't say enough positive about him. |
rebelette, i think the blood pressure cuff feeling in the under arm
i get this REALLY bad is pec minor |
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I wish you the best of luck!! |
Fat Pad?
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Where did you hear that and are there articles on it? I thought I just had disputed TOS but maybe I have the True type. i thought True was when you had a cervical rib. its amazing how much you can read and still not know things. Thanks,JKL |
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Hello, I'm irisheyesmilin. Where do you live? I am from Southern NH about an hour from Boston's Mass Gen. Hospital. Dr. Dean Michael Donahue is who I have seen. I am seriously considering him to do my surgery. When your dr. speaks of weight it's interesting. I asked Dr. D. about my weight and if he felt I should loose weight. He said, "I can't ask anyone to loose weight, that's not my business. I can say it would be easier in the sense that when I cut it would be less to cut to find what I'm looking for, ie: nerves etc. He is very empathetic, kind and a good listener. I have had tos for 42 years. |
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