Had appointment with neuro this morning
 

Had an appointment with my neuro this morning. He listed two more drugs that I have failed -- gabapentin and elavil. I have experienced alot of "failures" in the past two years.

Results of his exam were positive -- good muscle strength, coordination, relexes, no sigh of clonus. He increased my baclofen by one pill (10 mg). I am now going to take it with each meal and at bedtime to see if it helps with the increase in spasticity. Luckily, I usually only experience the pain when walking -- not when sitting or in bed. I am just going to try to handle the pins/needles/burning pain in my head and my vibrating leg for now. Lyrica is probably the next step and it has the same side effects as gabaentin, as I "failed" at cymbalta a few years ago. My appetite has returned to normal (nausea has mostly disappeared) and I am slowly losing more weight.

He has quit pushing new treatments since my ms is considered stable and is still saying that he thinks there will be oral meds out next year.

Hang in there Barbo!
 

I haven't been around a lot (I've only had the energy to lurk). I too have the MS pain, tingling and numbness and I am on the maximum of about everything. I'm on 900mg of lyrica 3 times a day, 120 mg of cymbalta and 50 mg of elavil and 500 mg-1000mg of Vicodin as needed which I try not to take until I can think or do anything because of the pain, tingling and numbness. All it really does is take the edge off it or help me go to sleep with my sleep meds. Neurontin never worked for me. Anyway, I just wanted you to know that I understand what your going through. Just keep on communicating with your doctor. Quality of life is so important. These symptoms of ms are the pits. Keep hanging in there and if you need to talk to someone just pm me.

Hugs and doxie kisses,

doxie

ps: I'm on a diet too (lol)!

I went through a period of time that I had reactions to everything I took, it didnt matter if it was tylenol or morphene. I was not happy on it. After my MS settled a bit (i didnt know then I had ms) and my inflammatory markers came down some, I was able to once again take tylenol, and other stuff. I asked an infectious disease MD and he said once the body goes into a fight, sometimes it just keeps kicking till everyone and everything is out of the pool so you can reboot the system. I have noticed the more sx I have of MS the more sensitive I become to pharmacuticals. weird.

I am glad your doing ok. The increase in baclofen should help. it helps me, and since its so short acting, it doesnt drag on you all day. Zanaflex stayed with me a long time.

Hang in there.