NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Traumatic Brain Injury and Post Concussion Syndrome (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/)
-   -   Are you ok PONO? (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/38520-ok-pono.html)

cathym 02-08-2008 01:11 AM

Are you ok PONO?
 
Checking in. It's been a while....

Lucy 02-08-2008 02:13 AM

What about you Lori?
 
Haven't heard from you in ages. I so hope you are ok. - Just answer yes - that will do!

Lynlee

jeffn 02-08-2008 10:52 AM

What about PCS Mc GEE
 
Mc Gee you out there?

Jeffn

pono 02-14-2008 10:23 AM

I'm OK...
 
thanks for asking... I've been having problems w/ computer so haven't been online. also family, medical, personal issues... too much to get into now...
will try to catch up on posts ....
and update soon...

Hope all are doing well....

cathym 02-15-2008 12:02 AM

Thank you!
 
Thanks so much for the reply. Hang in there.

pono 02-16-2008 01:42 PM

updates...
 
trying again to write.. ongoing poblems w/ computer and also other med disorders --neuro, chronic pain , etc--too much to detail now; much exacerbated by weather, and other stressors.... dealing w/ my challenges & problems while trying to maintain as primary carer for my terminally ill father. he's been very sick past weeks...
we've accessed some more help but 'Training' & directing others in our home has its own stresses & issues... wish I could do all that's needed but....

TBI/PCS stuff seems to go in unpredictable cycles--of some relief, improvements then [more] episodes of dysfunction...cognitive, physical , mental, emotional; "sensitivities"--to sound/noise; light; temperatures, and more.. up's & downs....

also, "drop attacks" continue--i've felt these are some type of seizure or related disorder despite tests saying NOT; these began after I was hit by car over 10 yrs ago. AED meds were prescribed (for neuro pain,headaches) but adverse & allergic reactions.

Headaches - one of my big complaints- are less severe,
since my 1st treatmt w/ Botox few weeks ago, I've gotten limited but encouraging relief;perhaps more treatmts will provide more ...

Headaches/neck pain are still constant ; usually worst at nite - and -major player in my sleep problems. NOt totally alleviated but better....

5HTP has helped w/ sleep, and also some headaches. I tried melatonin w/out success. 5HTP seems better for me....
Some report depression helped w/ [higher doses of] 5HTP.
trials showed similar outcome /benefits compared to other RX antidepressant meds--w/out adverse effects of the drugs.

I also am taking more vitamins & other supplements. MethylB12- for fatigue and brain, nerves. My suspicion of B12 deficiency eventually validated by tests.
I've learned that the type or form of many vitamins & supplements is very relevant . I'd been taking B12- as cyancobalimin -the most common form of B12 in most vitamins and also in RX injections. it didn't seem to help . then, folks at NT Forum for vitamins, supplements, herbs- "educated" me about Methyl B12.
check out this NT Forum for more details & info. --its a good place to ask questions, get advice on related topics. there are other places/sites that also have good info.

I recently increased dose of Methyl B12 from 1000 to 3000mcg day. Hope improvements w/ fatigue & other neuro issues.

Magnesium can help headaches. I was using MagOxide prescribed by DR but found better assimilulated liquid form that also has calcium.
there's more--Vitamins- D, B complex; trying to eat better (I've slipped into poor nutrition & habits after months of nausea, vomiting esp w/ migraines, and also flares of TN -Trigeminal Neuralgia & other zaps of head/facial pains.

Be mindfull that anything we put into our bodies-- from RX meds to vitamins, supplements, even foods -
can have affects..or interactions.(some may NOT be desirable)
Be aware [quality, combinations, personal sensitivities can result from additives, binders, preservatives...
I've found affordable good quality products @ iherb.com

aromatherapy is subtle but can help, Used in baths, or diffusers; I got an eye pillow that has lavendar & some other aroma's that can relax and sometimes do ward off headaches....
Other oils helped w/ headaches, nausea, etc.
Herbs too... sedative, calmatives like chamomile, melissa, and more... can help relax & aid sleep; headaches, etc..
some can be invigorating, energizing, stimulating (like peppermint-which can be good for nausea, headaches)
I like these more natural & gentle self help home remedies but not always fully successful..
still get those big headaches [ migraines]... but far less now.
other dysfunctions & problems .. mine & those of my family & situation.... continue to challenge....

so lots to work on, Learn, deal with.... it is a process...
I've tried many interventions, for various problems. will continue to share some of those experiences , success & failiure...appreciate what others share here. I'm so sorry for the reasons that bring folks here,but I am very grateful for support and more shared here. thanks so much.
wish all the BEST...

jeffn 02-17-2008 11:22 AM

Good Morning Pono
 
Hi Pono Thanks for the update sounds like you are making some progress.

I've also been using 5-htp for the last 10 days or so and it seems to be helping, I'll have a better idea of what this supplement is doing in 30 days.

OK Take Care Pono and I hope the quality of your life improves. Jeffn

PCS McGee 02-24-2008 09:13 PM

Quote:

Originally Posted by jeffn (Post 210496)
Mc Gee you out there?

Jeffn

I'm still alive, just don't come by here very often anymore. Hope you're well.

jeffn 02-24-2008 11:29 PM

Thank You
 
Thanks Mc Gee I hope your making progress in your research and your recovery and that your doing well.

Take Care Jeffn


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