TOS and travelling
 

I have boooked a trip all around europe later this year, going to be gone for like 6 weeks. Alot of planes rides alot of hiking ect..

And breaking out of my routine, . how do you think this will affect everything?

Anyone had any experince with this ?

I went to Europe for 3 weeks a few years ago and it was the most miserable 3 weeks of my entire life.

I love travel (or should I say that I used to love travel before I got TOS). For me, too much walking really makes my symptoms worse. I had migraines and very high pain the entire time.

That said, I'm glad you're going. We can't let TOS take everything we love away.

I rented apartments rather than stay in hotels. That allowed me to be in another room if I had a migraine and my partner and child didn't have to tip toe around.

I love walking when I travel but I should have taken taxis and saved my walking for museums, sights, etc. Instead I took the subways and walked too much before I even reached my destinations. So spend that extra money on cabs to make it easier to get places. That way you won't be wiped out before you get to your desired spot.

And lastly, I really had to pace myself. The first day I was in London and Paris, I did too much and it ruined the rest of the time. I wish I had done less those first days in each city so I would have been functional the rest of the time.

Good luck. I hope you have a great time. It sounds like you can tolerate walking better than I can so hopefully none of my problems will befall you.

Kelly

I only travel to warm destinations now. I looked at Europe for this next summer and the multiple planes, trains and toting luggage here and there was not appealing to me. Opted for hot and humid Costa Rica instead.

Tips:

Check-in luggage, rolling bag is my only option. I only carry-on a teeny tiny purse, prescriptions and a Kindle. I refuse to go through the new x-ray machines which require you to hold your arms up. Even though I explain I have a disability, I get "the look" and a snark face every time by the TSA.

Aisle seat and/or window. If you don't take meds for your pain, a muscle relaxant may help for a long haul flight. A Flexeril helped me get to China. Drink lots of water and walk the plane frequently.

I bring all of my "tools." I have a collection of little balls, air pillows and a sawed off 3" roller which all fit in my suitcase. Rolled up hotel towels can work for rollers in a pinch. I do my exercise routine every morning and night while traveling. My immediate family understands this is my routine, but when I travel with others, I have to set my ground rules. Not looking forward to a trip to Vegas in a few weeks with my mom and sis - :rolleyes::rolleyes::rolleyes::rolleyes::rolleyes:

Sleep medication, melatonin or other supplements may help you get in the time zone quicker and easier. Lack of sleep equals pain and you'll have more tolerance being well rested.

Pace yourself! If you have a busy active day, then enjoy a more relaxing one the next.

Lose yourself in the newness and fun of the destination. You may forget you have TOS for moments or even hours. Have a great time.

My TOS defianetly doesnt sound as bad as yours, i can handling walking no problem, even running, even heavy weight lifting still. The pain is still ther but it comes and goes.. Jus seeing how i would go without getting all physio treatments ect.