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-   -   Getting off meds (https://www.neurotalk.org/epilepsy/16818-getting-meds.html)

mwaidem 04-02-2007 09:59 AM

Getting off meds
 
I was "retired" from the military due to a stroke and have a siezure disorder resulting from it. If I can go so many years without medication and siezures I can get back in. Does this seem like a very hopeful result? Has anybody had positive results post stroke without meds for siezures? Over two years I've had a combined 2 grand maul and about 3 focal siezures. One of the grand mauls were at the time of my stroke. After a year of being on meds I tried going without. I went 5 months siezure free without meds, but then my dr convinced me to start taking them again. Shortly thereafter I had my next grand maul. I've gained back full function since the stroke, thanks to being soo young when it happened. This is my one hang-up. Any info and hope would be great.

LIZARD 04-02-2007 10:20 AM

You sound like me...and unfortunately, we're both in situations where "breakthrough" szs are much more likely than they are for someone with no known cause. Since you apparently had a sz while you were on med, the likelihood of being off med permanently with no return of your szs is probably very low. I'm sorry. :( Certainly ask your neuro, as I'm just a well-read, lifelong neuro patient myself, but this is what I know. It's simply not a realistic expectation under such circumstances. Your brain has suffered a great insult, and this is the result. A small dose may give you excellent control, as it does me, but med may (and probably will) always be necessary.


LIZARD :)


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