how do u live
 

with the anger and frustration knowing that 99% of people dont get post concussion syndrome from the same type of concussions as us

i have so much anger as too why me? why am i having all these problems from the same type of hit as all my friends?

and i dont want anyone replying saying everyone gets pcs because i know for a fact most people dont

my doctors have told me they are really worried about me they've never seen anyone having problems past 3 months? so what is the deal

Hi Rick92,

I can't see where you live, but maybe that's one reason your Dr.'s are so worried - because the population where you live isn't large enough for them to have seen this before statistically.

I'm sorry they said that to you, their worry isn't going to help you get any better. Do they know that?

I live in Los Angeles and my Primary Care Physician and Neurologist both have seen this before and I've been healing for 18 months now. Neither one of them are worried - I think they still think it's possible for me to make a return to near full or full health.

It's perfectly natural to get angry about having to deal with this.

But you don't know if your friends got the "same type of hit" as you. You don't know what happened microscopically inside their heads or yours. And you might not know whether you've hit your head before and been dazed and it shook off after a few minutes or a few hours and whether that is contributing to what you're going through now, because the effects of concussions are cumulative.

I'm pretty sure the facts say that about 10% of people get PCS that lasts more than three months. (Not 1%)

And experts really don't know enough to figure out why more than they already have. We just live in a time period where we don't have all the information yet. I imagine if we lived during the time of star trek, in the future, we would all get some kind of medical scan with a tricorder and we'd all be fine. But the information that people like us that are going through this are providing to the experts are hopefully going to make that possible someday.

As to why - you're going to have to figure that one out on your own. I'm a very spiritual person, so I have faith that everything is in divine order. If my boyfriend were experiencing the same thing, he's an atheist, so he's have a lot more trouble with it. But maybe someday in the future you will be able to help people in a way that you wouldn't have been able to without going through this - maybe you'll become inspired to be a charismatic representative for the Brain Injury Association of America and will help people understand what it is people with PCS go through. Who knows what the future holds!

Just try to remember that the calmer you are, the better you'll feel and most likely, the faster you'll heal.

Speaking to a therapist once a week has really helped me get through the anger I feel about what I'm going through. Maybe something like that could help you too. Or yoga, or meditation, or coloring, or drawing, or a short peaceful walk, or something.

Take care. :hug:

Are you on any medication? It sounds like you could use the help of an anti-depressant.

I feel you though, bro. I'm right behind you at 7 months...and I'm frustrated all the time. My injury was a completely random assault that happened at the end of a pleasant day with a friend. I had no control over it. I could sit here and wonder how it would of been different if we didn't stop at that McDonalds that day, or if we didn't leave the house at all...but those kind of thoughts lead to frustration, stress and anxiety. There's nothing we can do about the past.

Just stay focused on your recovery. I know its hard to do, but stop thinking about how it happened and why your friends that took similar hits aren't experiencing what you are. It will only make you feel worse. Be happy that your alive and that someday you will be better.

Good luck.

thank yall. yeah its just like no other injury thats frustrating. i always was afraid of breaking a bone but i would have rather broken any bone rather than this happen.

yeah i was taking an antidepressant called nortriptyline for 2 months for the headaches but i have quit taking them since last week

You may be going through a more depressive, more angry, or just more emotional phase since you topped taking the anti-depressant last week. I read that happens to people - it's like a withdrawal.

I was prescribed tramadol and took it regularly for months, it acts as a pain killer and an anti-depressant apparently, and it messed me up for weeks after I stopped taking it. ::shudders::

I TOTALLY understand!! A professor I work with was complaining about how long it was taking for her sprained ankle to heal last week. I thought, "well, a brain takes a bit longer than that..." :winky:

I agree. It's incredibly frustrating, and even more so when the doctors don't seem to have a handle on what's going on. I find it really hard to accept myself, much less to explain to the bazillion people around me who don't understand what's going on.

Emotional lability (mood swings) is also a symptom of PCS, so that can bring on some of the strong emotions like anger.

If the strong emotions concern you, you could also ask about a more typical antidepressant like Prozac or Celexa.

Anger
 

ANGER at your situation is a normal 1st stage of grieving loss of who you think you are. Quit expecting yourself to be normal and by the way who told you life is fair was lying to you. Be angry. All of us have been after and during such an ordeal.

I say the same thing, I always tell myself I wish that I could trade this for broken bones, or whatever...but you know that's not possible. Just keep your head up dude.

If you need to talk about something I'm hear for you. Just send me a PM or whatever.

Dont Sweat it
 

hey its only been 3 months, that's not so bad, its only when the years start adding up that it really takes a toll. Just keep a positive attitude and try to pass the time (as hard as that sounds) by any means necessary. Stay strong!

MY Bad
 

I misread the thread, so its been a year, its still very short by comparison to many. And your young so your body will surely heal in time. :)